ArticleEuropean journal of pediatrics2019
Gastroschisis at school age: what do parents report?
Article in European journal of pediatrics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
10 citing papers in PubMed, 1 synthesis or guideline pooled it, 29 citations in OpenAlex.
- European reference network for rare inherited congenital anomalies (ERNICA) evidence based guideline on the management of gastroschisis.Orphanet journal of rare diseases · 2024Guideline
- Gastroschisis: diagnosis, prognosis and treatment options.Frontiers in pediatrics · 2025Review
- Gastrointestinal quality of life in children born with gastroschisis.Pediatric surgery international · 2024Article
- Long-term motor activity, cardiopulmonary performance and quality of life in abdominal wall defect patients.Pediatric research · 2024Article
- Case Report: foetal gastroschisis with ideal pregnancy outcomes under multidisciplinary treatment management.Frontiers in pediatrics · 2024Article
- Predictors of Social-Emotional Development and Adaptive Functioning in School-Age Children with Intestinal Failure.Journal of clinical psychology in medical settings · 2023Article
- The DUX-25 after Twenty-Five Years: New Analyses and Reference Data.Children (Basel, Switzerland) · 2022Article
- Parent-Reported Perceived Cognitive Functioning Identifies Cognitive Problems in Children Who Survived Neonatal Critical Illness.Children (Basel, Switzerland) · 2022Article
- Childhood Educational Outcomes of Children Born with Gastroschisis.The Journal of pediatrics · 2022Article
- Quality of life in pediatric intestinal failure: A scoping review.Intestinal Failure (New York, N.Y.)Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Children with gastroschisis are at high risk of morbidity in early life, which could affect long-term outcomes. We determined parent-reported outcomes in school-aged children born in 2000-2012, using paper questionnaires. Parent-perceived child vulnerability and motor function were compared with the Dutch reference data; parent-rated data on cognition, health status, quality of life, and behavior were compared with those of controls matched for age, gender, and maternal education level. Of 77 eligible participants, 31 (40%) returned the questionnaires. Parent-reported motor function was normal in 23 (74%) children. Total scores on health status, quality of life, and behavior did not differ significantly from those of matched controls. Children with gastroschisis had lower scores on cognition (median (interquartile range); 109 (87-127)) than their matched controls (124 (113-140); p = 0.04). Neonatal intestinal failure and increased parent-perceived vulnerability were associated with lower scores on cognition (β - 25.66 (95% confidence interval - 49.41, - 1.91); - 2.76 (- 5.27, - 0.25), respectively).Conclusion: Parent-reported outcomes of school-aged children with gastroschisis were mainly reassuring. Clinicians and parents should be aware of the higher risk of cognitive problems, especially in those with neonatal intestinal failure or increased parent-perceived vulnerability. We recommend multidisciplinary follow-up at school age of children with gastroschisis and neonatal intestinal failure. What is Known: • Many infants with gastroschisis experience morbidity in early life. • Data on developmental outcomes and daily functioning in children with gastroschisis beyond the age of 5 years are scarce and conflicting. What is New: • Parents of school-aged children treated for gastroschisis report normal motor function, health status, quality of life, and behavior. • Children with gastroschisis, especially those with intestinal failure, may be at risk for cognitive problems at school age. Parents who reported their child as being more vulnerable also reported more cognitive problems at school age.
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