Evidence map›Paper›PMID 31322558›Full record

ArticleJournal of Alzheimer's disease : JAD2019

The Role of Care Navigators Working with People with Dementia and Their Caregivers.

Alissa Bernstein, Krista L Harrison, Sarah Dulaney, Jennifer Merrilees, Angela Bowhay, Julia Heunis, Jeff Choi, Julie E Feuer, Amy M Clark, Winston Chiong and 7 more

Registry-linked trialAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of Alzheimer's disease : JAD, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04287738 (Care Ecosystem), which is not on this map. Cited by 34 papers.

0numbers the graph read from it
0cells of the map it votes in
34citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04287738 nacompletednot on this map

Care Ecosystem: Navigating Patients and Families Through Stages of Care, Extension Trial

TypeinterventionalSponsorUniversity of California, San FranciscoRan2015 to 2022Enrolled912ConditionsDementia, Alzheimer Disease, Dementia, Vascular, Lewy Body DiseaseArmsNavigated Care
3 · Its place in the literature

Who cites it

34 citing papers in PubMed.

  1. Trial
  2. Trial
  3. Trial
  4. Trial
  5. Trial
  6. Trial
  7. Article
  8. Dissemination of the Care Ecosystem Collaborative Care Model for Dementia.Journal of the American Geriatrics Society · 2025
    Article
  9. Article
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. 2024 Alzheimer's disease facts and figures.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2024
    Article
  17. Article
  18. Article
  19. Observational
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors.

Alissa BernsteinPhilip R. Lee Institute for Health Policy Studies, University of California, San Francisco, San Francisco, CA, USA.
Krista L HarrisonGlobal Brain Health Institute, University of California, San Francisco, San Francisco, CA, USA.
Sarah DulaneyMemory and Aging Center, Department of Neurology, University of California, San Francisco, San Francisco, CA, USA.
Jennifer MerrileesMemory and Aging Center, Department of Neurology, University of California, San Francisco, San Francisco, CA, USA.
Angela BowhayDepartment of Internal Medicine, Division of Geriatrics, Home Instead Center for Successful Aging, Omaha, NE, USA.
Julia HeunisMemory and Aging Center, Department of Neurology, University of California, San Francisco, San Francisco, CA, USA.
Jeff ChoiMemory and Aging Center, Department of Neurology, University of California, San Francisco, San Francisco, CA, USA.
Julie E FeuerMemory and Aging Center, Department of Neurology, University of California, San Francisco, San Francisco, CA, USA.
Amy M ClarkDepartment of Internal Medicine, Division of Geriatrics, Home Instead Center for Successful Aging, Omaha, NE, USA.
Winston ChiongMemory and Aging Center, Department of Neurology, University of California, San Francisco, San Francisco, CA, USA.
Kirby LeeMemory and Aging Center, Department of Neurology, University of California, San Francisco, San Francisco, CA, USA.
Tamara L BraleyDepartment of Internal Medicine, Division of Geriatrics, Home Instead Center for Successful Aging, Omaha, NE, USA.
Stephen J BonaseraDepartment of Internal Medicine, Division of Geriatrics, Home Instead Center for Successful Aging, Omaha, NE, USA.
Christine S RitchieGlobal Brain Health Institute, University of California, San Francisco, San Francisco, CA, USA.
Dan DohanPhilip R. Lee Institute for Health Policy Studies, University of California, San Francisco, San Francisco, CA, USA.
Bruce L MillerMemory and Aging Center, Department of Neurology, University of California, San Francisco, San Francisco, CA, USA.
Katherine L PossinGlobal Brain Health Institute, University of California, San Francisco, San Francisco, CA, USA.

Funding

Institutional Career Development Core SupplementKL2TR001870 · NCATS · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI KANAYA, ALKA M., SARKAR, URMIMALA · 2016 to 2025
$19.7M
The Care Ecosystem: Navigating patients and caregivers through stages of dementia careR01AG056715 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI POSSIN, KATHERINE LAUREL · 2017 to 2021
$6.0M
NCATS NIH HHS KL2 TR001870NIA NIH HHS L30 AG060590NIA NIH HHS R01 AG056715
6 · The paper itself

Abstract

backgroundCare navigation is an approach to personalized care management and care coordination that can help overcome barriers to care. Care navigation has not been extensively studied in dementia, where health care workforce innovations are needed as a result of increasing disease prevalence and resulting costs to the health care system.

objectiveTo identify facilitators and barriers to care navigation in dementia and to assess dementia caregiver satisfaction with care navigation.

methodsMethods include qualitative research (interviews, focus groups, observations) with "Care Team Navigators" (CTNs) who were part of a dementia care navigation program, the Care Ecosystem, and a quantitative survey with caregivers about their experiences with CTNs. Transcripts were analyzed to identify themes within the data.

resultsCTNs identified the following facilitators to care navigation in dementia: working closely with caregivers; providing emotional support; tailoring education and resources; and coordinating with a clinical team around issues ranging from clinical questions to financial and legal decision-making. The barriers CTNS identified included burn-out, the progressive nature of the disease; coordinating with primary care providers; and identifying resources for dyads who are low-income, do not speak English, or live in rural areas. Caregivers across both sites highly rated CTNs, though satisfaction was higher among those in Nebraska and Iowa.

conclusionsInnovative approaches to care delivery in dementia are crucial. Care navigation offers a feasible model to train unlicensed people to deliver care as a way to deliver larger-scale support for the growing population of adults living with dementia and their caregivers.

Indexed as

CaregiversAdultAgedConsumer BehaviorDementiaFemaleFocus GroupsHealth Services AccessibilityHumansInterviews as TopicMalePatient NavigationSurveys and QuestionnairescaregiversCare navigationdementiahealth care workforce

Identifiers

PMID31322558
PMCPMC7004209

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.