ArticleHealth expectations : an international journal of public participation in health care and health policy2019
A taxonomy of impacts on clinical and translational research from community stakeholder engagement.
Article in Health expectations : an international journal of public participation in health care and health policy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06581276 (Increasing Access to Evidence-based Treatment for Chronic Pain and Opioid Use Disorder), which is not on this map. Cited by 18 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Increasing Access to Evidence-based Treatment for Chronic Pain and Opioid Use Disorder: Adapting Acceptance and Commitment Therapy for Opioid Treatment Programs
Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Evaluation of research co-design in health: a systematic overview of reviews and development of a framework.Implementation science : IS · 2024Pooled it
- Leveraging the Translational Science Benefits Model to plan and measure early impact in the heart failure polypill implementation trial in Sri Lanka.Journal of clinical and translational science · 2026Article
- Adapting Experience-Based Co-Design to Disability Research: Co-Producing the CycLink Co-Design Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Time, trust, and relationships: Creating a culture of community engagement to advance translational research through resource allocation, modeling, and recognition.Journal of clinical and translational science · 2025Article
- Evaluation means making CQI collaborative (E = MCJournal of clinical and translational science · 2025Article
- Characteristics of research review boards in the context of community-academic settings: A scoping review.Journal of clinical and translational science · 2025Review
- Community engagement contributions to rural health research: Researchers' experience with the Midwest Rural Health Research Community Advisory Board.Journal of clinical and translational science · 2025Article
- Protocol: Assessing the impact of interest-holder engagement on guideline development: A systematic review.Campbell systematic reviews · 2024Article
- Aligning organisational priorities and implementation science for cancer research.BMC health services research · 2024Article
- Integrating participants as partners in research governance and operations: an approach from theBMJ open · 2023Review
- Beyond Finding Purpose: Motivating a Translational Science of Purpose Acquisition.International journal of environmental research and public health · 2023Review
- Development, implementation, and dissemination of operational innovations across the trial innovation network.Journal of clinical and translational science · 2023Article
- Community engagement and financial arrangements: Navigating institutional change.Journal of clinical and translational science · 2023Article
- Making community voices heard in a research-health service alliance, the evolving role of the Community Advisory Group: a case study from the members' perspective.Research involvement and engagement · 2021Article
- Researchers' experiences working with community advisory boards: How community member feedback impacted the research.Journal of clinical and translational science · 2021Article
- "It has to be designed in a way that really challenges people's assumptions": preparing scholars to build equitable community research partnerships.Journal of clinical and translational science · 2021Article
- Patient Stories Can Make a Difference in Patient-Centered Research Design.Journal of patient experience · 2020Article
- A taxonomy of impacts on clinical and translational research from community stakeholder engagement.Health expectations : an international journal of public participation in health care and health policy · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
backgroundCommunity engagement is increasingly recognized as a valuable tool in clinical and translational research; however, the impact of engagement is not fully understood. No standard nomenclature yet exists to clearly define how research changes when community stakeholders are engaged across the research spectrum. This severely limits our ability to assess the value of community engagement in research. To address this gap, we developed a taxonomy for characterizing and classifying changes in research due to community engagement.
methodsUsing an iterative process, we (a) identified areas of potential impact associated with community engagement from author experience, (b) categorized these in taxonomic bins based on research stages, (c) conducted semi-structured interviews with researchers and community stakeholders, (d) validated the codebook in a sample dataset and (e) refined the taxonomy based on the validation. Community stakeholders were involved in every step of the process including as members of the primary study team.
resultsThe final taxonomy catalogues changes into eleven domains corresponding to research phases. Each domain includes 2-4 dimensions depicting concepts within the domain's scope and, within each dimension, 2-10 elements labelling activities through which community engagement could change research.
conclusionsCommunity engagement has great potential to enhance clinical and translational research. This taxonomy provides a common vocabulary and framework for understanding the impact of community engagement and suggests metrics for assessing the value of community engagement in research.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.