Evidence map›Paper›PMID 31318132›Full record

Trial reportEuropean journal of cancer care2019

Digital literacy linked to engagement and psychological benefits among breast cancer survivors in Internet-based peer support groups.

Stephen J Lepore, Maria A Rincon, Joanne S Buzaglo, Mitch Golant, Morton A Lieberman, Sarah Bauerle Bass, Suzanne Chambers

Open access · greenAbstract readRandomized Controlled Trial
In one paragraph

Trial report in European journal of cancer care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 4 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
23citing papers in PubMed, 4 pooled it
6.2field-weighted citation impact, top 4% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

23 citing papers in PubMed, 4 syntheses or guidelines pooled it, 41 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
  3. Pooled it
  4. Pooled it
  5. Trial
  6. Digital Divide Among U.S. Adults with and without Cancer: Prevalence and Associated Factors.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026
    Article
  7. Review
  8. Factors influencing information overload among breast cancer patients in the information explosion era: a cross-sectional study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  9. Article
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  12. Article
  13. Empowerment among breast cancer survivors using an online peer support community.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024
    Article
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  16. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 4 institutions in 2 countries.

Stephen J LeporeDepartment of Social & Behavioral Sciences, Temple University, Philadelphia, PA, USA.ORCID https://orcid.org/0000-0001-7370-6280
Maria A RinconTemple University, Philadelphia, PA, USA.
Joanne S BuzagloThe Cancer Support Community, Philadelphia, PA, USA.
Mitch GolantThe Cancer Support Community, Philadelphia, PA, USA.
Morton A LiebermanUniversity of California, San Francisco, CA, USA.
Sarah Bauerle BassTemple University, Philadelphia, PA, USA.
Suzanne ChambersUniversity of Technology Sydney, Sydney, New South Wales, Australia.ORCID https://orcid.org/0000-0003-2369-6111
Temple University · USCancer Support Community · USUniversity of California, San Francisco · USUniversity of Technology Sydney · AU

Funding

A Novel Prosocial Online Support Group for Distressed Breast Cancer SurvivorsR21CA158877 · NCI · TEMPLE UNIV OF THE COMMONWEALTH · PI LEPORE, STEPHEN J · 2011 to 2012
$360k
National Cancer InstituteNational Institutes of Health R21CA15887NCI NIH HHS R21 CA158877
6 · The paper itself

Abstract

objectiveInternet-based peer support groups (ISGs) represent an innovative, scalable approach to addressing information and support needs of cancer survivors. However, this innovation may not benefit survivors equally due to population variance in digital literacy. This study examined how digital literacy influences level of engagement in and psychological benefits from participating in ISGs for breast cancer (N = 183).

methodsSecondary analysis of data from a randomised trial of ISGs that included behavioural measures of engagement, subjective ratings and psychological distress symptoms.

resultsDigital literacy was positively related to education level (p = .005). Relative to women with high digital literacy, those with lower digital literacy were more likely to report difficulties using the ISG and to value the user's guide and facilitator assistance (all p's < .05). Digital literacy was negatively correlated with computer anxiety pre-intervention, distress before and after online chat during the intervention and post-intervention depressive symptoms (all p's < .05).

conclusionLow digital literacy is associated with computer anxiety and barriers to ISG use, as well as distress during and after ISG use. Digital literacy must be taken into account when designing or delivering innovative digital interventions for cancer survivors.

Indexed as

Computer LiteracyHealth LiteracyInternetAdultAgedAttitude to ComputersBreast NeoplasmsCancer SurvivorsConsumer Health InformationEducational StatusFemaleHumansMiddle AgedPeer GroupStress, Psychologicalbreast neoplasmscancer survivorsInternetliteracypsychologicalsocial support

Identifiers

PMID31318132
PMCPMC8344410
OpenAlexW2963509441

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.