Evidence map›Paper›PMID 31313096›Full record

ArticleJournal of community genetics2020

Exploring perceptions of consanguineous unions with women from an East London community: analysis of discussion groups.

Meghan A Cupp, Mary Adams, Michelle Heys, Monica Lakhanpaul, Emma C Alexander, Yasmin Milner, Tausif Huq, Meradin Peachey, Lakmini Shah, Iram Shazia Mirza and 1 more

Open access · hybridAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of community genetics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.3field-weighted citation impact, top 38% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 4 citations in OpenAlex.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 6 institutions in 2 countries.

Meghan A CuppUCL Great Ormond Street Institute of Child Health, 30 Guilford Street, London, WC1N 1DP, UK. m.cupp@ucl.ac.uk.ORCID http://orcid.org/0000-0002-9900-2799
Mary AdamsKing's College London, Division of Women and Children's Health, Faculty of Life Science and Medicine, St Thomas' Hospital, London, SE1 7HE, UK.
Michelle HeysUCL Great Ormond Street Institute of Child Health, 30 Guilford Street, London, WC1N 1DP, UK.
Monica LakhanpaulUCL Great Ormond Street Institute of Child Health, 30 Guilford Street, London, WC1N 1DP, UK.
Emma C AlexanderKing's College London School of Medical Education, Hodgkin Bldg, Newcomen St, London, SE1 1UL, UK.
Yasmin MilnerUCL Institute of Epidemiology & Health, 1-19 Torrington Place, London, WC1E 7HB, UK.
Tausif HuqKing's College London School of Medical Education, Hodgkin Bldg, Newcomen St, London, SE1 1UL, UK.
Meradin PeacheyNewham University Hospital, Barts NHS Trust, 30 Guilford Street, London, E13 8SL, UK.
Lakmini ShahNewham University Hospital, Barts NHS Trust, 30 Guilford Street, London, E13 8SL, UK.
Iram Shazia MirzaNewham University Hospital, Barts NHS Trust, 30 Guilford Street, London, E13 8SL, UK.
Logan ManikamAceso Global Health Consultants Limited, 3 Abbey Terrace, London, SE2 9EY, UK.
Great Ormond Street Hospital · GBNewham University Hospital · GBKing's College London · GBLondon Borough Of Lewisham · GBSt Thomas' Hospital · GBUniversity College London · GB

Funding

Department of Health NIHR300020London Borough Of Newham (GB) n/a
6 · The paper itself

Abstract

Consanguineous unions are relationships between blood relatives. This study explores the perceptions of consanguineous unions and risk of childhood disability and illness through the reported views and experiences of women in an ethnically diverse London community. This qualitative study utilised group discussions to elicit women's views and experiences. Field notes were recorded by independent note-takers in four group discussions. Field notes were coded manually and independently by two researchers who identified common themes for thematic analysis. Thirty-six women attended, of whom 20 identified as Asian Pakistani. Identified themes included variation in participants' views of consanguineous unions and associated health risks, the value of informed decisions and preferences for information distribution. Although participants had diverse opinions and experiences, they considered risk awareness to be vital for encouraging informed decisions in younger generations. This study highlights the importance of involving the community in efforts to increase awareness around consanguineous unions and genetic risk, emphasising the need for enabling educated choices and the value of co-developing educational efforts with the community.

Indexed as

ConsanguinityGenetic literacy

Identifiers

PMID31313096
PMCPMC7062959
OpenAlexW2958808984

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.