ArticleBMC palliative care2019
Supporting carers: health care professionals in need of system improvements and education - a qualitative study.
Article in BMC palliative care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
What it found
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Who cites it
16 citing papers in PubMed, 36 citations in OpenAlex.
- Family Members' Psychosocial Support in Palliative Inpatient Care: A Cross-Sectional Study.Journal of family nursing · 2025Article
- Patient and Carer Understandings and Experiences of Living With Type 2 Diabetes in India.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Choosing the Path: Insights Into Zambian Medical Students' Specialty Selections.Health science reports · 2025Article
- Exploring the lived experience of loneliness and social isolation in informal palliative caregivers: A systematic review.Palliative care and social practice · 2025Review
- Integrating family caregivers in older adults' hospital stays: a needed cultural shift.Hospital practice (1995) · 2024Article
- Development of Web-Based Education Modules to Improve Carer Engagement in Cancer Care: Design and User Experience Evaluation of the e-Triadic Oncology (eTRIO) Modules for Clinicians, Patients, and Carers.JMIR medical education · 2024Article
- Potential Implementers' Perspectives on the Development and Implementation of an e-Mental Health Intervention for Caregivers of Adults With Chronic Kidney Disease: Qualitative Interview Study.JMIR human factors · 2023Article
- Supporting family carers in general practice: a scoping review of clinical guidelines and recommendations.BMC primary care · 2023Article
- Healthcare professionals' perceptions of psychosocial support for family members in palliative care inpatient units-A qualitative descriptive study.Nursing open · 2023Article
- Supporting family carers in Ireland: the role of the general practitioner.Irish journal of medical science · 2023Article
- A qualitative comparison of the nutrition care experiences of carers supporting patients with head and neck cancer throughout surgery and radiation treatment and survivorship.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Factors influencing adult carer support planning for unpaid caregiving at the end of life in Scotland: Qualitative insights from triangulated interviews and focus groups.Health & social care in the community · 2022Article
- Article
- Support practices by an interdisciplinary team in a palliative-care unit for relatives of patients in agonal phase.BMC palliative care · 2020Article
- Caring for Family Caregivers of Geriatric Patients: Results of a Participatory Health Research Project on Actual State and Needs of Hospital-Based Care Professionals.International journal of environmental research and public health · 2020Article
- An examination of home-based end-of-life care for cancer patients: a qualitative study.BMC palliative care · 2019Article
Corrections and comments
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Authors and funding
6 authors at 4 institutions in 2 countries.
Funding
Abstract
backgroundHealth care professionals should prevent and relieve suffering in carers of patients with advanced cancer. Despite known positive effects of systematic carer support, carers still do not receive sufficient support. Carers have reported to be less satisfied with coordination of care and involvement of the family in treatment and care decisions than patients. In a rural district of Mid-Norway, cancer palliative care services across specialist and community care were developed. Participants' experiences and opinions were investigated as part of this development process.
methodsThe aim of this qualitative study was to explore and describe health care professionals' experiences with carer support from their own perspective. Data were collected in focus groups. Purposeful sampling guided the inclusion. Six groups were formed with 21 professionals. The discussions were audio-recorded, transcribed, and analyzed using systematic text condensation.
resultsIn the analyzis of the focus group discussions, ten categories emerged from the exploration of health care professionals' carer support, assessment of needs, and factors hampering carer support: 1) dependent on profession, role, and context, 2) personal relationship, 3) personal skills and competence, 4) adjusted to the stage of the disease, 5) informal assessment of carers' needs, 6) lack of education 7) lack of systems for carer consultations, 8) lack of systems for documentation, 9) lack of systems for involving GPs, and 10) lack of systematic spiritual care.
conclusionsHealth care professionals built a personal relationship with the carers as early as possible, to facilitate carer support throughout the disease trajectory. Systematic carer support was hampered by lack of education and system insufficiencies. Organizational changes were needed, including 1) education in carer support, communication, and spiritual care, 2) use of standardized care pathways, including systematic carer needs assessment, 3) systematic involvement of general practitioners, and 4) a system for documentation of clinical work with carers.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.