Evidence map›Paper›PMID 31311535›Full record

ReviewBMC medicine2019

Building the case for actionable ethics in digital health research supported by artificial intelligence.

Camille Nebeker, John Torous, Rebecca J Bartlett Ellis

Abstract readReview
In one paragraph

Review in BMC medicine, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 78 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
78citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

78 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Pooled it
  4. Article
  5. Towards Human-Centered Digital Health Interventions.The Psychiatric clinics of North America · 2026
    Review
  6. Review
  7. Article
  8. Article
  9. Article
  10. Article
  11. Metadata-Based Privacy Assessment for Mobile mHealth.Sensors (Basel, Switzerland) · 2026
    Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. Article
  17. Review
  18. Article
  19. Article
  20. Article

18 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Camille NebekerDepartment of Family Medicine and Public Health, School of Medicine, University of California San Diego, La Jolla, CA, 92093, USA. nebeker@eng.ucsd.edu.
John TorousBeth Israel Deaconess Medical Center, Harvard Medical School, 330 Brookline Ave, Boston, MA, 02215, USA.
Rebecca J Bartlett EllisSchool of Nursing, Indiana University, 600 Barnhill Drive, Indianapolis, IN, 46202, USA.

Funding

Digital Phenotyping for Computational Models of Relapse Prediction in Early Course PsychosisK23MH116130 · NIMH · BETH ISRAEL DEACONESS MEDICAL CENTER · PI TOROUS, JOHN · 2018 to 2021
$872k
NIMH NIH HHS K23 MH116130
6 · The paper itself

Abstract

The digital revolution is disrupting the ways in which health research is conducted, and subsequently, changing healthcare. Direct-to-consumer wellness products and mobile apps, pervasive sensor technologies and access to social network data offer exciting opportunities for researchers to passively observe and/or track patients 'in the wild' and 24/7. The volume of granular personal health data gathered using these technologies is unprecedented, and is increasingly leveraged to inform personalized health promotion and disease treatment interventions. The use of artificial intelligence in the health sector is also increasing. Although rich with potential, the digital health ecosystem presents new ethical challenges for those making decisions about the selection, testing, implementation and evaluation of technologies for use in healthcare. As the 'Wild West' of digital health research unfolds, it is important to recognize who is involved, and identify how each party can and should take responsibility to advance the ethical practices of this work. While not a comprehensive review, we describe the landscape, identify gaps to be addressed, and offer recommendations as to how stakeholders can and should take responsibility to advance socially responsible digital health research.

Indexed as

Artificial IntelligenceDelivery of Health CareHealth PromotionHealth Services ResearchHumansInventionsMobile ApplicationsPrecision MedicineProfessional PracticeArtificial intelligenceBioethicsDigital healthDigital medicinePrecision medicineResearch ethics

Identifiers

PMID31311535
PMCPMC6636063

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.