ArticleInternational psychogeriatrics2020
Attitudes toward advance care planning among persons with dementia and their caregivers.
Article in International psychogeriatrics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 4 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
24 citing papers in PubMed, 4 syntheses or guidelines pooled it, 48 citations in OpenAlex.
- The general public's perceptions of advance care planning (ACP) in the Asia-Pacific region: a systematic review.BMC palliative care · 2026Pooled it
- Factors associated with participation in advance care planning among people with different degrees of cognitive impairment: a systematic review.BMC palliative care · 2026Pooled it
- Palliative Care in Early Dementia.Journal of pain and symptom management · 2024Pooled it
- How does ethnicity affect presence of advance care planning in care records for individuals with advanced disease? A mixed-methods systematic review.BMC palliative care · 2023Pooled it
- Advance Care Planning Intention and Associated Factors Among People With Dementia: A Mixed-Methods Study.Journal of advanced nursing · 2026Article
- Needs of key stakeholders to make advance care plans and advance directives for people with dementia: a scoping review.BMC geriatrics · 2025Article
- End-of-Life Care for Older Adults With Dementia by Race and Ethnicity and Physicians' Role.JAMA health forum · 2025Article
- Free-Text Responses in a Nationally Representative Experimental Survey about End-of-Life Care Choices: ChatGPT-4o-Assisted Qualitative Analytical Study.JMIR aging · 2025Article
- Knowledge, attitudes, and representations of caregivers of individuals with major neurocognitive disorders regarding palliative and end-of-life care: a narrative literature review.BMC palliative care · 2025Review
- Perspectives of Former Caregivers of Black Older Adults Living With Dementia on Advance Care Planning.Journal of gerontological nursing · 2025Article
- Caregivers' Perspectives on Discussions of Medical Treatment Preferences for People Living With Dementia Are Associated With Their Dementia Health Literacy and the Caregiving Relationship.The Gerontologist · 2025Article
- Advance care planning in adults ages 80 years and older with impaired cognition: Using actual conversations to examine best practices.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Disparities in Advance Care Planning Across Rurality, Sociodemographic Characteristics, and Cognition Levels: Evidence from the Health and Retirement Study.Journal of ageing and longevity · 2024Article
- Development of an Advance Care Planning Portal-Based Tool for Community-Dwelling Persons Living With Cognitive Impairment: The ACPVoice Tool.The American journal of hospice & palliative care · 2023Article
- Translation and psychometric testing of the sense of competence in Dementia Care Staff Scale in Chinese amongst dementia care staff in nursing homes of China.BMC geriatrics · 2023Article
- "This is how I want it": Exploring the use of a workbook with persons with dementia to support advance care planning engagement.Dementia (London, England) · 2022Article
- A Decade of Studying Drivers of Disparities in End-of-Life Care for Black Americans: Using the NIMHD Framework for Health Disparities Research to Map the Path Ahead.Journal of pain and symptom management · 2022Review
- Racial and Ethnic Differences in Hospice Use and Hospitalizations at End-of-Life Among Medicare Beneficiaries With Dementia.JAMA network open · 2022Article
- Predictors of the importance of everyday preferences for older adults with cognitive impairment.International psychogeriatrics · 2022Article
- Advance Care Planning in Neurodegenerative Disorders: A Scoping Review.International journal of environmental research and public health · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
15 authors at 13 institutions in 1 country.
Funding
Abstract
objectivesTo examine factors that influence decision-making, preferences, and plans related to advance care planning (ACP) and end-of-life care among persons with dementia and their caregivers, and examine how these may differ by race.
designCross-sectional survey.
setting13 geographically dispersed Alzheimer's Disease Centers across the United States.
participants431 racially diverse caregivers of persons with dementia. MEASUREMENTS: Survey on "Care Planning for Individuals with Dementia."
resultsThe respondents were knowledgeable about dementia and hospice care, indicated the person with dementia would want comfort care at the end stage of illness, and reported high levels of both legal ACP (e.g., living will; 87%) and informal ACP discussions (79%) for the person with dementia. However, notable racial differences were present. Relative to white persons with dementia, African American persons with dementia were reported to have a lower preference for comfort care (81% vs. 58%) and lower rates of completion of legal ACP (89% vs. 73%). Racial differences in ACP and care preferences were also reflected in geographic differences. Additionally, African American study partners had a lower level of knowledge about dementia and reported a greater influence of religious/spiritual beliefs on the desired types of medical treatments. Notably, all respondents indicated that more information about the stages of dementia and end-of-life health care options would be helpful.
conclusionsEducational programs may be useful in reducing racial differences in attitudes towards ACP. These programs could focus on the clinical course of dementia and issues related to end-of-life care, including the importance of ACP.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.