ArticleNPJ digital medicine2018
NIH support of mobile, imaging, pervasive sensing, social media and location tracking (MISST) research: laying the foundation to examine research ethics in the digital age.
Article in NPJ digital medicine, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Underlying strategies of scaling up and sustaining physical activity interventions.Frontiers in health services · 2026Pooled it
- Educating Students About Digital Health Research Ethics: Curricula Review and Expert Interview Study.Journal of medical Internet research · 2026Article
- Stanford Screenomics: An Open-source Platform for Unobtrusive Multimodal Digital Trace Data Collection from Android Smartphones.medRxiv : the preprint server for health sciences · 2025Article
- Considerations for the Design of Informed Consent in Digital Health Research: Participant Perspectives.Journal of empirical research on human research ethics : JERHRE · 2024Article
- Ethical, legal, and social implications of digital health: A needs assessment from the Society of Behavioral Medicine to inform capacity building for behavioral scientists.Translational behavioral medicine · 2024Article
- Leveraging Mobile Technology for Public Health Promotion: A Multidisciplinary Perspective.Annual review of public health · 2023Review
- Perspective: Opportunities and Challenges of Technology Tools in Dietary and Activity Assessment: Bridging Stakeholder Viewpoints.Advances in nutrition (Bethesda, Md.) · 2022Article
- Lessons Learned: Beta-Testing the Digital Health Checklist for Researchers Prompts a Call to Action by Behavioral Scientists.Journal of medical Internet research · 2021Article
- Development of a decision-making checklist tool to support technology selection in digital health research.Translational behavioral medicine · 2020Article
- Predictive Analytics and the Return of "Research" Information to Participants.Applied Human Factors and Ergonomics Conference · 2020Article
- Ethical dilemmas posed by mobile health and machine learning in psychiatry research.Bulletin of the World Health Organization · 2020Article
- Using Participatory Design to Inform the Connected and Open Research Ethics (CORE) Commons.Science and engineering ethics · 2020Article
- An overview of GeoAI applications in health and healthcare.International journal of health geographics · 2019Article
- A crossroad for validating digital tools in schizophrenia and mental health.NPJ schizophrenia · 2018Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
Mobile Imaging, pervasive Sensing, Social media and location Tracking (MISST) tools used in research are raising new ethical challenges for scientists and the Institutional Review Boards (IRBs) charged with protecting human participants. Yet, little guidance exists to inform the ethical design and the IRB's regulatory review of MISST research. MISST tools/methods produce personal health data that is voluminous and granular and, which may not be subject to policies like the Health Information Portability and Accessibility Act (HIPAA). The NIH Research Portfolio Online Reporting Tools (RePORTER) database was used to identify the number, nature and scope of MISST-related studies supported by the NIH at three time points: 2005, 2010 and 2015. The goal was to: 1-examine the extent to which the NIH is supporting this research and, 2-identify how these tools are being used in research. The number of funded MISST research projects increased 384% from 2005 to 2015. Results revealed that while funding of MISST research is growing, it only represented about 1% of the total NIH budget in 2015. However, the number of institutes, agencies, and centers supporting MISST research increased by roughly 50%. Additionally, the scope of MISST research is diverse ranging from use of social media to track disease transmission to personalized interventions delivered through mobile health applications. Given that MISST research represents about 1% of the NIH budget and is on an increasing upward trajectory, support for research that can inform the ethical, legal and social issues associated with this research is critical.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.