Evidence map›Paper›PMID 31300501›Full record

ArticleBMJ open2019

Understanding rural caregivers' experiences of cancer care when accessing metropolitan cancer services: a qualitative study.

Anna Ugalde, Sarah Blaschke, Anna Boltong, Penelope Schofield, Sanchia Aranda, Jo Phipps-Nelson, Suzanne K Chambers, Meinir Krishnasamy, Patricia M Livingston

Abstract read
In one paragraph

Article in BMJ open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 39 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
39citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

39 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
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  5. Access to Supportive Care Among Australian Cancer Carers: Experiences of Priority Populations.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
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  8. "The aspect of caregiving becomes incredibly complex": lived experiences of rural cancer caregiving identified through community advisory board engagement.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  9. Coping with primary brain tumors together: a scoping review of dyadic psychosocial interventions.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
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  15. Observational
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Anna UgaldeSchool of Nursing and Midwifery, Faculty of Health, Deakin University, Geelong, Victoria, Australia.ORCID 0000-0002-2473-8435
Sarah BlaschkeDepartment of Cancer Experiences Research, Peter MacCallum Cancer Centre, Parkville, Victoria, Australia.
Anna BoltongVictorian Comprehensive Cancer Centre, Parkville, Victoria, Australia.
Penelope SchofieldDepartment of Cancer Experiences Research, Peter MacCallum Cancer Centre, Parkville, Victoria, Australia.
Sanchia ArandaCancer Council Australia, Sydney, New South Wales, Australia.
Jo Phipps-NelsonDepartment of Cancer Experiences Research, Peter MacCallum Cancer Centre, Parkville, Victoria, Australia.
Suzanne K ChambersUniversity of Technology Sydney, New South Wales, Australia.
Meinir KrishnasamyVictorian Comprehensive Cancer Centre, Parkville, Victoria, Australia.
Patricia M LivingstonSchool of Nursing and Midwifery, Faculty of Health, Deakin University, Geelong, Victoria, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveTo explore the experiences of cancer caregivers who live in rural Australia and travel to a metropolitan cancer health service to access cancer treatment.

designA qualitative study using semistructured, audio-recorded interviews conducted between December 2017 and July 2018 with caregivers and social workers. Thematic analysis using interpretative descriptive techniques performed on textual interview data within a critical realist paradigm to develop understanding of rural caregivers' lived experiences.

settingParticipants were from rural areas attending a metropolitan cancer centre in Australia and social workers.

participants21 caregivers (16 female) of people with cancer living in rural Australia within a minimum distance of 100 km from the metropolitan cancer centre where they access treatment, and five social workers employed at a metropolitan cancer service with experience of working with rural patients and caregivers.

resultsThematic analysis developed two overarching themes: theme 1:

conclusionsCaregivers who live in rural areas face significant challenges when confronting geographic isolation between their rural home environment and the metropolitan setting, where the patient accessed cancer treatment. There is a need for healthcare services to identify this group to develop feasible and sustainable ways to provide interventions that have the best chance of assisting rural caregivers in supporting the patient while maintaining their own health and well-being.

Indexed as

AdultCaregiversFemaleHealth Services AccessibilityHumansMaleMiddle AgedNeoplasmsQualitative ResearchRural Health ServicesRural PopulationUrban Health Servicescancercaregiversinterviewsqualitativeruralsupportive care

Identifiers

PMID31300501
PMCPMC6629412

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.