ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2020
The evolution of regret: decision-making for parents of children with cancer.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 2 of them syntheses that pooled it.
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Who cites it
21 citing papers in PubMed, 2 syntheses or guidelines pooled it, 45 citations in OpenAlex.
- Racial and ethnic disparities in communication study enrollment for young people with cancer: A descriptive analysis of the literature.Patient education and counseling · 2022Pooled it
- Multilevel barriers and facilitators of communication in pediatric oncology: A systematic review.Pediatric blood & cancer · 2022Pooled it
- Moving toward precision communication in pediatric oncology clinical trials: An outline of a conceptual framework to support caregiver decision-making.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Planting seeds for seasons ahead: Communication strategies for prognostic disclosure in pediatric neuro-oncology.Neuro-oncology practice · 2026Article
- Are we Optimizing Multidisciplinary Care when it Matters Most? Evaluating Psychosocial Involvement in Critical Conversations in a Pediatric Oncology Clinic.Journal of clinical psychology in medical settings · 2026Article
- Healthcare professionals' perspectives on disclosure of diagnosis and related issues in childhood cancer: A mixed methods systematic review.International journal of nursing sciences · 2026Review
- Article
- Advance Care Planning Conversations in Pediatric Patients with Refractory Oncologic Disease.Children (Basel, Switzerland) · 2025Review
- Role experiences of women with breast cancer as daughters: A qualitative meta-synthesis.Asia-Pacific journal of oncology nursing · 2024Review
- Weathering the storm when the end of the road is near: A qualitative analysis of supportive care needs during CAR T-cell therapy in pediatrics.Pediatric blood & cancer · 2024Article
- Experiences and preferences of truth-telling in families of children with cancer: A phenomenological study.Asia-Pacific journal of oncology nursing · 2024Article
- Illness cognition and associated socio-demographic and clinical factors in parents of children with leukemia.BMC psychology · 2024Article
- Functions of patient- and family-centered pediatric cancer communication in Pakistan.Frontiers in oncology · 2024Article
- Free Online Decision Tools to Support Parents Making Decisions About Their Children's Chronic Health Condition: An Environmental Scan.Academic pediatrics · 2023Review
- Parental Views of Social Worker and Chaplain Involvement in Care and Decision Making for Critically Ill Children with Cancer.Children (Basel, Switzerland) · 2022Article
- Cancer treatment decision-making among parents of paediatric oncology patients in Guatemala: a mixed-methods study.BMJ open · 2022Article
- Decisional regret about surgical and non-surgical issues after genitoplasty among caregivers of female infants with CAH.Journal of pediatric urology · 2022Article
- Conflicting goals and obligations: Tensions affecting communication in pediatric oncology.Patient education and counseling · 2022Article
- "Don't be afraid to speak up": Communication advice from parents and clinicians of children with cancer.Pediatric blood & cancer · 2021Article
- Article
Corrections and comments
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Authors and funding
3 authors at 3 institutions in 1 country.
Funding
Abstract
purposeParents of children with cancer make treatment decisions in highly emotional states while feeling overwhelmed with information. In previous work, 1 in 6 parents demonstrated heightened decisional regret regarding treatment at diagnosis. However, it is unclear how regret evolves over time. We aimed to determine whether parents of children with cancer experience decisional regret over time and to identify parental characteristics and clinician behaviors associated with longitudinal regret.
methodsProspective, questionnaire-based cohort study of parents of children with cancer at two academic pediatric hospitals. Parents reported decisional regret at diagnosis, 4 months, and 12 months.
resultsAt baseline, 13% of parents (21/158) reported heightened regret, 11% (17/158) at 4 months (p = 0.43, McNemar's test relative to baseline), and 11% (16/158) at 12 months (p = 0.35 relative to baseline and p = 0.84 relative to 4 months). In multivariable analysis using generalized estimating equations adjusted for the time point of survey completion, heightened regret was associated with non-white race/ethnicity (OR 11.57, 95% CI 3.53 to 41.05, p < .0001) and high anxiety (OR 2.01, 95% CI 1.04 to 3.90, p = .04). Parents with high peace of mind (OR 0.24, 95% CI 0.09 to 0.62, p = .003) and those reporting high-quality information (OR 0.22, 95% CI 0.07 to 0.69, p = 0.01) had lower odds of heightened regret. We found no association between heightened regret and the time point of survey administration.
conclusionsA small, significant proportion of parents experience heightened regret throughout the first year of their child's cancer treatment; non-white parents are at higher risk. Effective communication may protect against regret.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.