ArticleBMC palliative care2019
The conceptual understanding of pediatric palliative care: a Swiss healthcare perspective.
Article in BMC palliative care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed, 2 syntheses or guidelines pooled it, 41 citations in OpenAlex.
- Experiences of Family Caregivers of Children Aged 1-23 Months Who Have Received Pediatric Palliative Care: A Systematic Review With Qualitative Metasynthesis.Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing · 2025Pooled it
- Specialist paediatric palliative care for children and young people with cancer: A mixed-methods systematic review.Palliative medicine · 2020Pooled it
- Nurses' perspectives on implementing pediatric palliative care: a qualitative participatory study on the emerging role of the advanced practice nurse.European journal of pediatrics · 2026Article
- Demographic variations and temporal trends in hospice and palliative care fellowship matches in the United States.Scientific reports · 2025Article
- Barriers and facilitators influencing referral and access to palliative care for children and young people with life-limiting and life-threatening conditions: a scoping review of the evidence.Palliative medicine · 2024Article
- Article
- Regional perspectives on the coordination and delivery of paediatric end-of-life care in the UK: a qualitative study.BMC palliative care · 2023Article
- Understanding pediatric palliative care within interdisciplinary palliative programs: a qualitative study.BMC palliative care · 2023Article
- Searching for human connection to transcend symbolisms in pediatric palliative care.Revista brasileira de enfermagem · 2023Article
- Communication of Early Integration of Palliative Care for Children With Cancer in Latin America: The Care as a Vessel Metaphor.JCO global oncology · 2023Article
- The physical and psychological outcomes of art therapy in pediatric palliative care: A systematic review.Journal of research in medical sciences : the official journal of Isfahan University of Medical Sciences · 2023Review
- Pediatric palliative care for children with cancer: a concept analysis using Rodgers' evolutionary approach.World journal of pediatrics : WJP · 2022Review
- Stories of paediatric palliative care: a qualitative study exploring health care professionals' understanding of the concept.BMC palliative care · 2022Article
- Challenges of paediatric palliative care in Romania: a focus groups study.BMC palliative care · 2021Article
- A Week in the Life: Pediatric Palliative Care through the Eyes of a Medical Student.Children (Basel, Switzerland) · 2021Article
- [Significance and current development status of pediatric palliative care].Zhongguo dang dai er ke za zhi = Chinese journal of contemporary pediatrics · 2020Review
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 3 institutions in 1 country.
Funding
Abstract
backgroundHealth care providers' perception of pediatric palliative care might negatively influence timely implementation. The aim of the study was to examine understanding of and attitudes towards pediatric palliative care from the perspective of health care providers working in pediatric oncology in Switzerland to promote the timely implementation of pediatric palliative care.
methodsFive mixed focus groups were conducted with 29 health care providers (oncologists, nurses, psychologists, and social workers) at five Swiss pediatric oncology group centers. The focus group interviews were analyzed using thematic coding.
resultsMost participants associated pediatric palliative care with non-curative treatment. They regularly reported difficulties in addressing palliative care services to families due to the strong stigma surrounding this term. They also thought that the notion of palliative care is very much linked to a policy context, and difficult to reconcile with children's everyday life. To overcome these obstacles many participants used synonyms such as comfort or supportive care. A few providers insisted on the need of using palliative care and reported the importance of positive "word of mouth".
conclusionsThe use of synonyms might be a pragmatic approach to overcome initial barriers to the implementation of palliative care in pediatrics. However, this tactic might ultimately prove to be ineffective as these terms might acquire the same negative connotations as palliative care. Positive word-of-mouth by satisfied families and healthcare providers might be a more sustainable way to advocate for pediatric palliative care than replacing it with a euphemistic term.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.