ArticleBMC medical informatics and decision making2019
Development and validation of a patient decision aid for prostate Cancer therapy: from paternalistic towards participative shared decision making.
Article in BMC medical informatics and decision making, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 1 of them a synthesis that pooled it.
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Who cites it
26 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Meaningful consumer involvement in cancer care: a systematic review on co-design methods and processes.JNCI cancer spectrum · 2024Pooled it
- Assessing patient risk, benefit, and outcomes in drug development: a decade of vemurafenib clinical trials.Melanoma management · 2025Article
- Investigation of the antitumor effects of deferasirox on prostate cancer cells: insights into proliferation, apoptosis, and invasion mechanisms.Molecular biology reports · 2025Article
- Shared Decision Making in the Treatment of Rectal Cancer.Journal of clinical medicine · 2025Review
- Embodied conversational agents for shared decision-making: a scoping review protocol.BMJ open · 2025Article
- Lessons Learned From Shared Decision-Making With Oral Anticoagulants: Viewpoint on Suggestions for the Development of Oral Chemotherapy Decision Aids.JMIR cancer · 2024Review
- Decision Aid for Colectomy in Recurrent Diverticulitis: Development and Usability Study.JMIR formative research · 2024Article
- The Patient Perspective on Colectomy for Recurrent Diverticulitis: A Qualitative Study.Annals of surgery · 2024Article
- Article
- The decision aid is the easy part: workflow challenges of shared decision making in cancer care.Journal of the National Cancer Institute · 2023Article
- Taking shared decision making for prostate cancer to the next level: Requirements for a Dutch treatment decision aid with personalized risks on side effects.Internet interventions · 2023Article
- Multilayer framework for digital multicomponent platform design for colorectal survivors and carers: a qualitative study.Frontiers in public health · 2023Article
- Development and external validation of multivariate prediction models for erectile dysfunction in men with localized prostate cancer.PloS one · 2023Article
- A comparison of machine learning models for predicting urinary incontinence in men with localized prostate cancer.Frontiers in oncology · 2023Article
- Development of a Pulmonary Rehabilitation Patient Decision Aid for Patients with Chronic Obstructive Pulmonary Disease: Mixed Methods Study.International journal of chronic obstructive pulmonary disease · 2023Review
- Shared decision-making in healthcare in mainland China: a scoping review.Frontiers in public health · 2023Article
- Usability: An introduction to and literature review of usability testing for educational resources in radiation oncology.Technical innovations & patient support in radiation oncology · 2022Article
- A Patient Decision Aid (i.ARTs) to Facilitate Women's Choice Between Oral and Long-Acting Injectable Antiretroviral Treatment for HIV: Protocols for its Development and Randomized Controlled Pilot Trial.JMIR research protocols · 2022Article
- Psychometric Properties of the 9-Item Shared Decision-Making Questionnaire (SDM-Q-9): Validation of the Italian Version in a Large Psychiatric Clinical Sample.Clinical neuropsychiatry · 2022Article
- Ask the parents: Testing the acceptability and usability of a hypospadias decision aid.Journal of pediatric urology · 2022Article
Corrections and comments
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Authors and funding
14 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient decision aids (PDAs) can support the treatment decision making process and empower patients to take a proactive role in their treatment pathway while using a shared decision-making (SDM) approach making participatory medicine possible. The aim of this study was to develop a PDA for prostate cancer that is accurate and user-friendly.
methodsWe followed a user-centered design process consisting of five rounds of semi-structured interviews and usability surveys with topics such as informational/decisional needs of users and requirements for PDAs. Our user-base consisted of 8 urologists, 4 radiation oncologists, 2 oncology nurses, 8 general practitioners, 19 former prostate cancer patients, 4 usability experts and 11 healthy volunteers.
resultsInformational needs for patients centered on three key factors: treatment experience, post-treatment quality of life, and the impact of side effects. Patients and clinicians valued a PDA that presents balanced information on these factors through simple understandable language and visual aids. Usability questionnaires revealed that patients were more satisfied overall with the PDA than clinicians; however, both groups had concerns that the PDA might lengthen consultation times (42 and 41%, respectively). The PDA is accessible on http://beslissamen.nl/ .
conclusionsUser-centered design provided valuable insights into PDA requirements but challenges in integrating diverse perspectives as clinicians focus on clinical outcomes while patients also consider quality of life. Nevertheless, it is crucial to involve a broad base of clinical users in order to better understand the decision-making process and to develop a PDA that is accurate, usable, and acceptable.
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