ArticleJournal of medical Internet research2019
Identification and Quantification of Gaps in Access to Autism Resources in the United States: An Infodemiological Study.
Article in Journal of medical Internet research, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 36 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
36 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Building Capacity: A Systematic Review of Training in the Diagnosis of Autism for Community-Based Clinicians.Autism research : official journal of the International Society for Autism Research · 2025Pooled it
- Personalized Lifespan Approach to Autism Assessment: A Clinical and System Framework for Developmentally Informed Assessment Across the Life-Course.Autism research : official journal of the International Society for Autism Research · 2026Article
- Advantages of combining multiple eye-tracking paradigms for distinguishing young autistic from non-autistic children.Molecular autism · 2026Article
- Prior Diagnoses and Age of Diagnosis in Children Later Diagnosed with Autism.Journal of autism and developmental disorders · 2026Article
- The Power of ECHO Autism: Improving Confidence and Holistic Care for Autistic Adults.Journal of intellectual disability research : JIDR · 2026Article
- The Influence of Policy on Early Diagnosis and Other Autism Services: A Narrative Review.Review journal of autism and developmental disorders · 2025Article
- Integration of Family Navigation into ECHO Autism for Pediatric Primary Care in Underserved Communities.Journal of autism and developmental disorders · 2025Article
- Evaluating general practitioners' knowledge and attitude of autism spectrum disorder and influencing factors at Gondar University Hospital, Gondar, Ethiopia.Scientific reports · 2025Article
- Sociodemographic Factors Associated with Autistic Youth's Psychotherapy Service Use.Administration and policy in mental health · 2025Article
- Development and Validation of Prediction Models for the Diagnosis of Autism Spectrum Disorder in a Korean General Population.JAACAP open · 2025Article
- Using #ActuallyAutistic on Twitter for Precision Diagnosis of Autism Spectrum Disorder: Machine Learning Study.JMIR formative research · 2024Article
- Utility of the Language Use Inventory in Young Children at Elevated Likelihood of Autism.Journal of speech, language, and hearing research : JSLHR · 2024Article
- Unlocking autism's complexity: theFrontiers in integrative neuroscience · 2024Article
- A Review of and Roadmap for Data Science and Machine Learning for the Neuropsychiatric Phenotype of Autism.Annual review of biomedical data science · 2023Review
- Racial and Ethnic Disparities in Geographic Access to Autism Resources Across the US.JAMA network open · 2023Article
- "Don't Promise Something You can't Deliver:" Caregivers' Advice for Improving Services to Adolescents and Young Adults with Autism.Autism research and treatment · 2023Article
- Screening for Autism in 2-Year-Old Children: The Application of the Systematic Observation of Red Flags to the Screening Tool for Autism in Toddlers and Young Children.American journal of speech-language pathology · 2022Article
- Multivariate Analysis of Metabolomic and Nutritional Profiles among Children with Autism Spectrum Disorder.Journal of personalized medicine · 2022Article
- Classifying Autism From Crowdsourced Semistructured Speech Recordings: Machine Learning Model Comparison Study.JMIR pediatrics and parenting · 2022Article
- Perspectives of Canadian Rural Consultant Pediatricians on Diagnosing Autism Spectrum Disorder: A Qualitative Study.Journal of developmental and behavioral pediatrics : JDBP · 2022Article
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
backgroundAutism affects 1 in every 59 children in the United States, according to estimates from the Centers for Disease Control and Prevention's Autism and Developmental Disabilities Monitoring Network in 2018. Although similar rates of autism are reported in rural and urban areas, rural families report greater difficulty in accessing resources. An overwhelming number of families experience long waitlists for diagnostic and therapeutic services.
objectiveThe objective of this study was to accurately identify gaps in access to autism care using GapMap, a mobile platform that connects families with local resources while continuously collecting up-to-date autism resource epidemiological information.
methodsAfter being extracted from various databases, resources were deduplicated, validated, and allocated into 7 categories based on the keywords identified on the resource website. The average distance between the individuals from a simulated autism population and the nearest autism resource in our database was calculated for each US county. Resource load, an approximation of demand over supply for diagnostic resources, was calculated for each US county.
resultsThere are approximately 28,000 US resources validated on the GapMap database, each allocated into 1 or more of the 7 categories. States with the greatest distances to autism resources included Alaska, Nevada, Wyoming, Montana, and Arizona. Of the 7 resource categories, diagnostic resources were the most underrepresented, comprising only 8.83% (2472/28,003) of all resources. Alarmingly, 83.86% (2635/3142) of all US counties lacked any diagnostic resources. States with the highest diagnostic resource load included West Virginia, Kentucky, Maine, Mississippi, and New Mexico.
conclusionsResults from this study demonstrate the sparsity and uneven distribution of diagnostic resources in the United States, which may contribute to the lengthy waitlists and travel distances-barriers to be overcome to be able to receive diagnosis in specific regions. More data are needed on autism diagnosis demand to better quantify resource needs across the United States.
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