Evidence map›Paper›PMID 31292175›Full record

ArticleBMJ open2019

What matters most to patients about primary healthcare: mixed-methods patient priority setting exercises within the PREFeR (PRioritiEs For Research) project.

Louisa Edwards, Melody Monro, Yaron Butterfield, Ravin Johl, Kent Cadogan Loftsgard, Hayley Pelletier, Colleen McGavin, M Ruth Lavergne

Abstract read
In one paragraph

Article in BMJ open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
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  11. Analysis of Patient Safety Incidents in Primary Care Reported in an Electronic Registry Application.International journal of environmental research and public health · 2021
    Article
  12. Patients as partners in health research: A scoping review.Health expectations : an international journal of public participation in health care and health policy · 2021
    Article
  13. Priority Setting in the Polish Health Care System According to Patients' Perspective.International journal of environmental research and public health · 2021
    Article
  14. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Louisa EdwardsFaculty of Health Sciences, Simon Fraser University, Burnaby, British Columbia, Canada.ORCID 0000-0001-9371-2805
Melody MonroFraser Health Authority, Surrey, British Columbia, Canada.
Yaron ButterfieldBC Primary Health Care Research Network Patient Advisory, Vancouver, British Columbia, Canada.
Ravin JohlBC Primary Health Care Research Network Patient Advisory, Vancouver, British Columbia, Canada.
Kent Cadogan LoftsgardBC Primary Health Care Research Network Patient Advisory, Vancouver, British Columbia, Canada.
Hayley PelletierBC Primary Health Care Research Network Patient Advisory, Vancouver, British Columbia, Canada.
Colleen McGavinBC SUPPORT Unit, Vancouver, British Columbia, Canada.
M Ruth LavergneFaculty of Health Sciences, Simon Fraser University, Burnaby, British Columbia, Canada.ORCID 0000-0002-4205-4600

Funding

CIHR 151801
6 · The paper itself

Abstract

objectivesTo identify patient-generated priority topics for future primary care research in British Columbia (BC), Canada within a diverse patient population.

designMixed-methods priority setting exercises framed by the dialogue model, using the nominal group technique (rank-ordered scoring) and province-wide online surveys capturing importance ratings of the top 10 primary healthcare topics from patients and primary care providers.

settingBC, Canada.

participantsTopic identification was completed by 10 patient partners (7 female, 3 male) from the BC Primary Health Care Research Network Patient Advisory; online surveys were completed by 464 patients and 173 primary care providers.

resultsThe 10 members recruited to the patient advisory provided over 80 experiences of what stood out for them in BC primary care, which were grouped thematically into 18 topics, 10 of which were retained in province-wide surveys. Top-rated survey topics for both patients (n=464) and providers (n=173) included being unable to find a regular family doctor/other primary healthcare provider, support for living with chronic conditions, mental health resources and information sharing, including electronic medical records. However, all 10 topics were rated important, on average, by both groups.

conclusionsThe current project activities demonstrate the feasibility of including patients in priority setting exercises for primary healthcare in general, rather than focusing on a condition-specific population or disease area. There was considerable overlap between patient-generated topics and topics previously identified by other stakeholders, but patients identified two additional topics (mental health resources, improve and strengthen patient-provider communication). More similarities than differences in topic importance between patients and providers emerged in the online surveys. The project activities that follow (rapid literature reviews, multistakeholder dialogue) will highlight under-researched topics and inform the development of specific research questions.

Indexed as

Health PrioritiesHealth Services ResearchPrimary Health CareAdultAdvisory CommitteesAgedBritish ColumbiaEducationFemaleHumansMaleMiddle AgedPatient ParticipationPatient SatisfactionQualitative Researchdialogue modelpatient engagementprimary health carepriority setting

Identifiers

PMID31292175
PMCPMC6624027

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.