Evidence map›Paper›PMID 31288804›Full record

ArticleBMC health services research2019

The experience of patients and family caregivers during hospital-at-home in France.

Hélène Rossinot, Odile Marquestaut, Matthieu de Stampa

Abstract read
In one paragraph

Article in BMC health services research, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 4 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
24citing papers in PubMed, 4 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

24 citing papers in PubMed, 4 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Pooled it
  4. Pooled it
  5. Trial
  6. Patients' experiences of receiving hospital care from a mobile care unit - a qualitative interview study.International journal of qualitative studies on health and well-being · 2026
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  20. Factors Related to Family Caregivers' Readiness for the Hospital Discharge of Advanced Cancer Patients.International journal of environmental research and public health · 2022
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Hélène RossinotPublique Hôpitaux de Paris (AP-HP), Hospitalisation à Domicile (HAD), 14 rue Vésale, 75005, Paris, France.
Odile MarquestautPublique Hôpitaux de Paris (AP-HP), Hospitalisation à Domicile (HAD), 14 rue Vésale, 75005, Paris, France.
Matthieu de StampaPublique Hôpitaux de Paris (AP-HP), Hospitalisation à Domicile (HAD), 14 rue Vésale, 75005, Paris, France. matthieu.de-stampa@aphp.fr.ORCID http://orcid.org/0000-0001-7238-5913

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPublic health policies tend to generalize the use of Hospital-At-Home (HAH) to answer the growing will of patients to be treated or to die at home. HAH is a model of care that provides acute-level services in the patient's home with the interventions of variety of health care professionals. Relatives participate also in the interventions by helping for sick patients at home, but we lack data on the care of patients and caregivers in HAH. The aim of this study was to make an inventory of the experiences of patients and family caregivers in HAH.

methodsThe research was qualitative using nineteen semi-directed interviews from nine patients and ten caregivers of one care unit of Greater Paris University Hospitals' HAH, and the grounded theory was used to analyze the transcripts. Caregivers were also asked, after the interview, to fill in the Zarit Burden Inventory.

resultsHAH remained mostly unknown for patients and caregivers before the admission proposition and the outlook of being admitted in HAH was perceived as positive, for both of them. Caregivers had a versatile role throughout HAH, leading to situations of suffering, but also had sources of support. The return home was considered satisfactory by both caregivers and patients, related to the quality of care and increased morale despite HAH's organizational constraints. We noted an impact of HAH on the relationship between the patient and the caregiver(s), but caused by multiple factors: the fact that the care takes places at home, its consequences but also the disease itself.

conclusionHAH strongly involved the patient's caregiver(s) all along the process. HAH's development necessitates to associate both patients and caregivers and to take into account their needs at every step. This study highlights the need to better assess the ability of the caregiver to cope with his or her relative in HAH with acute and subacute care at home.

Indexed as

CaregiversHome Care Services, Hospital-BasedAdaptation, PsychologicalAdultEvaluation Studies as TopicFemaleFranceHealth PolicyHouse CallsHumansMaleMiddle AgedQualitative ResearchCaregivers and patients at homeHealthcare organizationHospital at homeQuality of life

Identifiers

PMID31288804
PMCPMC6617632

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.