Evidence map›Paper›PMID 31286952›Full record

ArticleBMC medical ethics2019

A reflection on ethical and methodological challenges of using separate interviews with adolescent-older carer dyads in rural South Africa.

Dumile Gumede, Nothando B Ngwenya, Stella Namukwaya, Sarah Bernays, Janet Seeley

Abstract read
In one paragraph

Article in BMC medical ethics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
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  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Dumile GumedeAfrica Health Research Institute, Durban, South Africa. dumile.gumede@ahri.org.ORCID 0000-0002-8628-5726
Nothando B NgwenyaAfrica Health Research Institute, Durban, South Africa.
Stella NamukwayaMedical Research Council/ Uganda Virus Research Institute and LSHTM Uganda Research Unit, P.O Box 49, Entebbe, Uganda.
Sarah BernaysSydney School of Public Health, The University of Sydney, 324, Edward Ford Building A27, Sydney, Australia.
Janet SeeleyAfrica Health Research Institute, Durban, South Africa.

Funding

Wellcome TrustWellcome Trust 082384/Z/07/Z
6 · The paper itself

Abstract

backgroundThis article discusses our reflections on ethical and methodological challenges when conducting separate interviews with individuals in dyads in the uMkhanyakude district, South Africa. Our work is embedded in an ethnographic study exploring care relationships between adolescents and their older carers in the context of a large-donor funded HIV programme. We use these reflections to discuss some of the challenges and present possible management strategies that may be adopted in conducting dyadic health research in resource-poor settings.

methodsDrawing from the relational agency, three rounds of separate interviews and participant observation were undertaken with dyads of adolescents aged between 13 and 19 and their older carers aged 50+ from October 2017 to September 2018. A reflexive journal was kept to record the interviewer's experiences of the whole research process. We identified methodological and ethical challenges from these data during the thematic analysis.

resultsA total of 36 separate interviews were conducted with six pairs of adolescent-older carer dyads (n = 12 participants). Five themes emerged: recruitment of dyads, consenting dyads, confidentiality, conducting separate interviews with adolescents and older carers, and interviewer-dyad interaction. We also illustrated how we dealt with these challenges.

conclusionsResults from this study can guide the recruitment, consenting and collecting data for health studies that employ a similar form of enquiry in LMICs. However, ethical and methodological challenges should be recognised as features of the relationships between cross-generation dyads rather than weaknesses of the method.

Indexed as

Ethics, ResearchInterviews as TopicAdolescentConfidentialityFemaleHIV InfectionsHumansInformed ConsentMaleMiddle AgedParentsPatient SelectionRural PopulationSouth AfricaYoung AdultAdolescentsConfidentialityDyadsEthicsOlder carersSeparate interviews

Identifiers

PMID31286952
PMCPMC6615300

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LicenceCC BY
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.