ArticleJournal of cancer survivorship : research and practice2019
Information needs and information seeking behaviour of patients during follow-up of colorectal cancer in the Netherlands.
Article in Journal of cancer survivorship : research and practice, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed, 2 syntheses or guidelines pooled it, 36 citations in OpenAlex.
- What is known about digital literacy, digital inclusion and attitudes to digital health tools among older adults undergoing surgery? A systematic review and narrative synthesis.Age and ageing · 2026Pooled it
- Perioperative Expectations of Patients Undergoing Gastrointestinal Surgery for Cancer: A Systematic Review.Annals of surgical oncology · 2026Pooled it
- Improving Critical Appraisal of Cancer-Related Health Information: A Pilot Randomised Trial of the Informed Health Choices-Cancer Programme.Psycho-oncology · 2026Trial
- Information Seeking Behaviors and Preferences of Cancer Survivors: A Cross-sectional Study in Shanghai, China.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026Article
- Nutritional information needs and search behaviors in argentine oncology patientsRevista de la Facultad de Ciencias Medicas (Cordoba, Argentina) · 2025Article
- Evaluating the feasibility and acceptability of the Informed Health Choices-Cancer programme: A pilot randomised trial protocol.PloS one · 2025Article
- Exploring Health Information-Seeking Behavior and Information Source Preferences Among a Diverse Sample of Cancer Survivors: Implications for Patient Education.Journal of cancer education : the official journal of the American Association for Cancer Education · 2024Article
- T1 colorectal cancer patients' perspective on information provision and therapeutic decision-making after local resection.United European gastroenterology journal · 2024Article
- Information needs preferences of Chinese colorectal cancer patients receiving chemotherapy: A discrete choice experiment.Asia-Pacific journal of oncology nursing · 2024Article
- Nutrition and physical activity in cancer patients: a survey on their information sources.Journal of cancer research and clinical oncology · 2023Article
- Development and analysis of quality assessment tools for different types of patient information - websites, decision aids, question prompt lists, and videos.BMC medical informatics and decision making · 2023Review
- Using virtual reality to prepare patients for radiotherapy: A systematic review of interventional studies with educational sessions.Technical innovations & patient support in radiation oncology · 2023Review
- Addressing colon cancer patients' needs during follow-up consultations at the outpatient clinic: a multicenter qualitative observational study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Observational
- The patient perspective on the preoperative colorectal cancer care pathway and preparedness for surgery and postoperative recovery-a qualitative interview study.Journal of surgical oncology · 2022Article
- Access to Health Information in the Polish Healthcare System-Survey Research.International journal of environmental research and public health · 2022Article
- A Review of Web-Based Nutrition Information in Spanish for Cancer Patients and Survivors.Nutrients · 2022Review
- The needs of colorectal cancer patients/survivors: A narrative review.Journal of education and health promotion · 2022Review
- Stakeholders' Perspectives on eHealth Support in Colorectal Cancer Survivorship: Qualitative Interview Study.JMIR cancer · 2021Article
- Path analysis of survivorship care needs, symptom experience, and quality of life among multiethnic cancer survivors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Article
Corrections and comments
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Authors and funding
5 authors at 1 institution in 1 country.
Funding
Abstract
purposeAdequately informing patients is considered crucial in cancer care, but need for information and information seeking behaviour of colorectal cancer (CRC) patients in the Netherlands are currently not well known.
methodsIn a prospective study, patients participating in a specialty, hospital-based follow-up program completed three consecutive surveys over a 6-month period to analyse their information need and information seeking behaviour.
resultsPatients (n = 259) felt well informed about their treatment (86%), disease (84%), and follow-up program (80%), but less well informed about future expectations (49%), nutrition (43%), recommended physical activity (42%), and heredity of cancer (40%). The need for more information on these subjects remained constant over the first five postoperative years. Patients who were younger, who had undergone chemotherapy, or who had comorbid conditions needed more information on several subjects. One in three patients searched for information themselves, mostly on the Internet. One in four patients consulted a health care provider for information, mostly their GP. Younger and more educated patients more often searched for information themselves, while patients undergoing chemotherapy more often consulted the hospital nurse. Information seeking behaviour remained constant over time.
conclusionsThis study showed where current information provision is perceived as adequate and on which subject improvements can be made. It identifies information seeking behaviour and proposes ways to personalize information provision. IMPLICATIONS FOR CANCER SURVIVORS: The GP is most frequently consulted for information; involving GPs in CRC follow-up could improve information provision on several subjects for several patients.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.