Observational studyPloS one2019
Participation and autonomy five years after stroke: A longitudinal observational study.
Observational study in PloS one, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
32 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Do proprioceptive training strategies with dual-task exercises positively influence gait parameters in chronic stroke? A systematic review.Journal of rehabilitation medicine · 2024Pooled it
- Trial
- Exploring experiences of loneliness among stroke survivors living in the community: a secondary qualitative analysis.International journal of qualitative studies on health and well-being · 2026Article
- Factors Related to Depression Symptoms in Chronic Poststroke Aphasia.Archives of physical medicine and rehabilitation · 2026Article
- Lived Experiences of Returning to Participation After Mild Stroke: A Phenomenological Study in Spain.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Older Adults' Experiences of Commercial Virtual Reality for Stroke Rehabilitation: A Mixed-Methods Study.Medicina (Kaunas, Lithuania) · 2026Article
- Outdoor bicycle training following stroke: protocol development, feasibility testing and application guidelines.Frontiers in rehabilitation sciences · 2026Article
- Potential profiling of social alienation in elderly stroke patients and study of influencing factors.BMC geriatrics · 2025Article
- Contribution of Perceived Upper Limb Function to the Participation and Activity Levels Among Community-Dwelling People With Chronic Stroke.Annals of rehabilitation medicine · 2025Article
- Reshaping life after stroke: a grounded theory.International journal of nursing studies advances · 2025Article
- Family Members' Experiences of a Person-Centered Information and Communication Technology-Supported Intervention for Stroke Rehabilitation (F@ce 2.0): Qualitative Analysis.JMIR rehabilitation and assistive technologies · 2025Article
- Social participation challenges and facilitators among Chinese stroke survivors: a qualitative descriptive study.BMC public health · 2025Article
- Feeling lonely and dissatisfied - understanding social network functioning in stroke survivors.BMC psychology · 2024Article
- Participation and autonomy, independence in activities of daily living and upper extremity functioning in individuals with spinal cord injury.Scientific reports · 2024Observational
- Upper-Limb Functional Recovery in Chronic Stroke Patients after COVID-19-Interrupted Rehabilitation: An Observational Study.Journal of clinical medicine · 2024Article
- Stroke and liminality: narratives of reconfiguring identity after stroke and their implications for person-centred stroke care.Frontiers in rehabilitation sciences · 2024Article
- Characterizing the impact of multiple chronic conditions on return to participation in chronic stroke survivors.Topics in stroke rehabilitation · 2024Article
- Effects of visual arts-based interventions on physical and psychosocial outcomes of people with stroke: A systematic review and meta-analysis.International journal of nursing studies advances · 2023Review
- Participation and Its Association With Health Among Community-Dwelling Adults With Chronic Stroke.The American journal of occupational therapy : official publication of the American Occupational Therapy Association · 2023Article
- Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveStroke is the second most common cause of disability in the world. The purpose of this study was to evaluate the participation and autonomy of persons with stroke, five years after a stroke, and to explore potential associations between factors and perceived restrictions in participation and autonomy.
methodsThis five-year follow-up survey study included individuals diagnosed with a first-time stroke during 2009-2010, in Gothenburg. The survey included the Impact of Participation and Autonomy-questionnaire (IPA-E), which comprised five domains: Autonomy Indoor, Family Role, Autonomy Outdoor, Work & Education, and Social Life & Relationships. Logistic regression analyses were used to analyze factors associated with participation restrictions.
resultsAt 5 years after a stroke, 457 patients were alive; of these, 281 responded to the follow-up survey. Participation restrictions were most pronounced in the IPA-E domains of Autonomy Outdoors, Work/Education, and Social Life and Relationships. In contrast, restrictions were less pronounced in the IPA-E domains of Autonomy Indoors and Family Role. Severe stroke, older age, and female sex predicted participation restrictions at five years after a stroke. Participation restrictions were partly explained by feelings of depression at five years after stroke. Problems associated with participation restrictions were most frequently observed in the areas of mobility, leisure, and help/support from other people.
conclusionThis study showed that participation and autonomy were restricted among persons with stroke at five years after the stroke. The domains perceived as most restricted were those that required high levels of physical, social, and cognitive abilities.
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