ArticleBMC palliative care2019
Unregulated care providers' engagement in palliative care to older clients and their families in the home setting: a mixed methods study.
Article in BMC palliative care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
10 citing papers in PubMed.
- Understanding workplace peer support among healthcare assistants providing palliative and end-of-life care at home: A realist review.Palliative medicine · 2026Review
- Article
- Health care assistants in out of hours community palliative care: multiple qualitative organisational case studies.BMC palliative care · 2026Article
- Workplace support, wellbeing and intention to leave among lone working healthcare assistants providing palliative and end-of-life care in the community: A mixed methods study.Palliative medicine · 2026Article
- Understanding peer support among healthcare assistants delivering hospice care at home: a protocol for a realist review.BMJ open · 2025Article
- Homecare workers needs and experiences in end of life care: rapid review.BMJ supportive & palliative care · 2024Review
- Exploring a career pathway for home support workers in Ireland: a systematic scoping review of the international evidence.Frontiers in health services · 2024Article
- 'That just doesn't feel right at times' - lone working practices, support and educational needs of newly employed Healthcare Assistants providing 24/7 palliative care in the community: A qualitative interview study.Palliative medicine · 2023Article
- The roles, responsibilities and practices of healthcare assistants in out-of-hours community palliative care: A systematic scoping review.Palliative medicine · 2020Article
- Describing the end-of-life doula role and practices of care: perspectives from four countries.Palliative care and social practice · 2020Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
backgroundUnregulated care providers (UCPs) are at the forefront of direct client care in the community. Their services are required to meet the demand for home-based palliative care from a growing older population, yet understanding of UCPs involvement in care is limited. The study aimed to identify the types and frequencies of tasks performed by UCPs in home-based palliative care to older clients (> 65 years) and their families and to describe UCPs' engagement in care, and barriers and facilitators to their work.
methodsA mixed method approach was used comprising a quantitative retrospective chart review of UCPs' tasks (n = 66), qualitative content analysis of progress notes from clients' charts (n = 85), and thematic analyses of in-depth interviews with UCPs (n = 10).
resultsA thematic structure was derived from analyses and integration of data from the chart review and interviews. The themes reflect the physical, affective, and relational aspects of UCPs involvement in the care of clients and families at the end of life. The findings indicate that although a significant proportion (63%) of the 13, 558 UCP tasks identified were directed toward meeting clients' physical care needs, their presence in the home, made UCPs an important source of information on the client's condition; observing and appraising the situation. Further, the nature of their work and frequent interactions with clients and families also presented opportunities for UCPs to provide emotional support; a role UCPs felt was integral to their work.
conclusionsThe study highlights the challenging nature of palliative care to older clients and their families whose needs are often complicated, situated within the unique environment of home care where supervision of UCPs is at a distance. Challenges and facilitators to UCPs' work in this context are discussed with recommendations to support UCPs in their roles.
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Registered trials
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