ArticleBMC pediatrics2019
Viewpoints from families for improving transition from NICU-to-home for infants with medical complexity at a safety net hospital: a qualitative study.
Article in BMC pediatrics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
33 citing papers in PubMed, 89 citations in OpenAlex.
- Community-Based Follow-Up After NICU Discharge: A Practice-Focused Narrative Review of Nursing and Midwifery Care for Preterm Infants.Pediatric reports · 2026Review
- Exploring hope in parents of infants discharged from the neonatal intensive care unit: a cross-sectional study.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- Parent understanding and satisfaction with NICU discharge for infants with medical complexity: a scoping review of discharge instruction tools.BMC pediatrics · 2026Article
- Parent Understanding and Satisfaction with NICU Discharge for Infants with Medical Complexity: A Scoping Review of Discharge Instruction Tools.Research square · 2026Article
- Burden of chronic disease on NICU families: developmental outcomes, psychological effects, and vulnerable child syndrome.Journal of perinatology : official journal of the California Perinatal Association · 2026Review
- Interventions to support parents, families and caregivers in caring for preterm or low birth weight infants at home: A systematic review and meta-analysis.PLOS global public health · 2026Article
- A Compassion-Focused Approach to Support Parents After Preterm Birth.Clinical child and family psychology review · 2025Review
- Assessing current status and exploring influencing factors and mechanisms of mothers' discharge readiness for premature infants: A cross-sectional analysis using structural equation modeling.International journal of nursing studies advances · 2025Article
- Interventions to address inequities in infant mortality and morbidity in the NICU and beyond: A focus on the mother-infant dyad.Seminars in perinatology · 2025Review
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- Voices of parents of children with major congenital anomalies admitted to the NICU: initial diagnosis, hospitalization, and discharge home.Journal of perinatology : official journal of the California Perinatal Association · 2025Article
- The feasibility of virtual home visits to address unmet needs after NICU discharge.Journal of perinatology : official journal of the California Perinatal Association · 2025Article
- Neonatal therapy principles during transition from neonatal intensive care unit to home: A modified Delphi study.Developmental medicine and child neurology · 2025Article
- Designing eHealth interventions for children with complex care needs requires continuous stakeholder collaboration and co-creation.PEC innovation · 2024Article
- Parents' lived experience of early risk assessment for cerebral palsy in their young child using a mobile application after discharge from hospital in the newborn period.Annals of medicine · 2024Article
- Identifying barriers and facilitators to care for infants with bronchopulmonary dysplasia after NICU discharge: a prospective study of parents and clinical stakeholders.Journal of perinatology : official journal of the California Perinatal Association · 2024Article
- Ensuring Optimal Outcomes for Preterm Infants after NICU Discharge: A Life Course Health Development Approach to High-Risk Infant Follow-Up.Children (Basel, Switzerland) · 2024Review
- Associations between prematurity, postpartum anxiety, neonatal intensive care unit admission, and stress.Frontiers in psychiatry · 2024Article
- Delineating family needs in the transition from hospital to home for children with medical complexity: part 1, a meta-aggregation of qualitative studies.Orphanet journal of rare diseases · 2023Review
Corrections and comments
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Authors and funding
8 authors at 2 institutions in 1 country.
Funding
Abstract
backgroundWe have limited information on families' experiences during transition and after discharge from the neonatal intensive care unit.
methodsOpen-ended semi-structured interviews were conducted with English or Spanish- speaking families enrolled in Medicaid in an urban high-risk infant follow up clinic at a safety-net center, which serves preterm and high-risk term infants. We generated salient themes using inductive-deductive thematic analysis.
resultsTwenty-one participants completed the study. The infant's median (IQR) birth weight was 1750 (1305, 2641) grams; 71% were Hispanic and 10% were Black non-Hispanic; 62% reported living in a neighborhood with 3-4th quartile economic hardship. All were classified as having chronic disease per the Pediatric Medical Complexity Algorithm and 67% had medical complexity. A conceptual model was constructed and the analysis revealed major themes describing families' challenges and ideas to support transition centered on the parent-child role and parent self-efficacy. The challenges were: (1) comparison to normal babies, (2) caregiver mental health, (3) need for information. Ideas to support transition included, (1) support systems, (2) interventions using mobile health technology (3) improved communication to the primary care provider and (4) information regarding financial assistance programs. Specific subthemes differed in frequency counts between infants with and without medical complexity.
conclusionsFamilies often compare their preterm or high-risk infant to their peers and mothers feel great anxiety and stress. However, families often found hope and resilience in peer support and cited that in addition to information needs, interventions using mobile health technology and transition and financial systems could better support families after discharge.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.