ArticleJournal of cancer survivorship : research and practice2019
Preferences for cancer survivorship care among adolescents and young adults who experienced healthcare transitions and their parents.
Article in Journal of cancer survivorship : research and practice, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 36 papers, 3 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
36 citing papers in PubMed, 3 syntheses or guidelines pooled it, 67 citations in OpenAlex.
- Transitioning to adolescent and young adult or adult cancer survivorship care: A systematic review of contemporary guidelines and trials.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Pooled it
- Barriers and facilitators associated with long-term follow-up care for childhood, adolescent, and young adult cancer survivors: a systematic review.BMC health services research · 2025Pooled it
- Technology-Assisted Psychosocial Interventions for Childhood, Adolescent, and Young Adult Cancer Survivors: A Systematic Review and Meta-Analysis.Journal of adolescent and young adult oncology · 2022Pooled it
- Contextual Predictors of Engagement in a Tailored mHealth Intervention for Adolescent and Young Adult Cancer Survivors.Annals of behavioral medicine : a publication of the Society of Behavioral Medicine · 2021Trial
- Article
- Symptom management and transitioning to engagement with post-treatment care for adolescent and young adult cancer survivors (AYA STEPS): Study protocol.Contemporary clinical trials · 2026Article
- Exploring Key Unmet Supportive Care Needs of Adolescent and Young Adult Cancer Patients: A Qualitative Study to Inform Regional Program Development.Current oncology (Toronto, Ont.) · 2026Article
- Digital health interventions for psychological outcomes among adolescents and young adults with cancer: a systematic review and meta-analysis.NPJ digital medicine · 2026Article
- Case study in VersKiK: a methodological approach for studying paediatric cancer survivors' pathways.BMC medical research methodology · 2025Article
- Article
- A dyad-based analysis of social support dynamics among adolescent/young adult cancer survivors and their parents from a predominately Hispanic/Latino, socioeconomically disadvantaged, and rural population.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Factors influencing engagement in survivorship care among young adult survivors of hematologic malignancies: a mixed methods report.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Review
- Identifying concerns and needs in AYA survivors of pediatric cancer: a scoping review.Frontiers in psychology · 2025Review
- FIT4PEDON: Mobile Nutrition Counseling Application Effectiveness and Usability for Childhood Cancer Survivors.Healthcare informatics research · 2025Article
- Survivorship transitions in blood cancer: Identifying experiences and supportive care needs for caregivers.Journal of cancer survivorship : research and practice · 2024Article
- Disparities in the Occurrence of Long-Term Effects of Bone Marrow Suppression after Treatment in Adolescent Young Adult Breast Cancer Survivors.Annals of surgical oncology · 2024Article
- Activating Adolescent and Young Adult Involvement with Cancer Care Responsibilities: A Dyadic Qualitative Study with Caregivers.Journal of adolescent and young adult oncology · 2024Article
- Review
- Features of Studies on Transition Interventions for Childhood Cancer Survivors: A Scoping Review.Cancers · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 2 institutions in 1 country.
Funding
Abstract
purposeThis study aimed to elucidate experiences and preferences for survivorship care delivery among adolescent and young adult (AYA) childhood cancer survivors who experienced healthcare transitions.
methodsEight focus groups were conducted with two groups of AYA survivors and their parents: (1) those who recently completed cancer treatment and are beginning follow-up care and (2) those who disengaged in follow-up care after the transition from pediatric to adult survivorship clinics. Interviewers used a structured interview guide that contained questions about perceptions and preferences for survivorship care models, resources, and tools (e.g., a survivorship care plan). We employed directed content analysis techniques to identify and organize relevant themes.
resultsResults of this study support six primary themes for optimizing survivorship care models for AYA: (1) improve knowledge of late effects and need for LTFU; (2) provide supportive services that help to address fear and uncertainty about health; (3) adapt survivorship care to be consistent with AYA developmental factors; (4) increase support surrounding healthcare transitions; (5) improve survivorship care communication and coordination between patients and families, and between providers; and (6) incorporate digital health tools.
conclusionsThese groups represent vulnerable patient populations in AYA survivorship care and their perspectives highlight potential clinical and research priorities for enhancing long-term care models. IMPLICATIONS FOR CANCER SURVIVORS: Elucidating AYA and parent recommendations for survivorship care delivery can help to promote continuous engagement in care, target unmet needs, and promote health through survivorship models that are deemed acceptable to both patients and families.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.