Evidence map›Paper›PMID 31272398›Full record

ArticleBMC pregnancy and childbirth2019

Caregiving can be costly: A qualitative study of barriers and facilitators to conducting kangaroo mother care in a US tertiary hospital neonatal intensive care unit.

Todd P Lewis, Kathryn G Andrews, Elyse Shenberger, Theresa S Betancourt, Günther Fink, Sunita Pereira, Margaret McConnell

Open access · goldAbstract read
In one paragraph

Article in BMC pregnancy and childbirth, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 50 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
50citing papers in PubMed, 1 pooled it
13.5field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

50 citing papers in PubMed, 1 synthesis or guideline pooled it, 106 citations in OpenAlex.

  1. Pooled it
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  5. Social and structural disparities in family presence and engagement in the NICU.Journal of perinatology : official journal of the California Perinatal Association · 2026
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  9. Tiny babies, big bills: the vital role of the NICU in sustaining lives and health systems.Journal of perinatology : official journal of the California Perinatal Association · 2026
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  16. Parents' Experiences With an Early Behavioral Intervention, H-HOPE, in the NICU and at Home: A Qualitative Study.Advances in neonatal care : official journal of the National Association of Neonatal Nurses · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 5 institutions in 2 countries.

Todd P LewisDepartment of Global Health and Population, Harvard T.H. Chan School of Public Health, 677 Huntington Ave., Building 1, 11th Floor, Boston, MA, 02115, USA. toddlewis@g.harvard.edu.ORCID http://orcid.org/0000-0002-0018-532X
Kathryn G AndrewsDepartment of Global Health and Population, Harvard T.H. Chan School of Public Health, 677 Huntington Ave., Building 1, 11th Floor, Boston, MA, 02115, USA.
Elyse ShenbergerUniversity of Illinois at Chicago, Chicago, IL, USA.
Theresa S BetancourtBoston College School of Social Work, Chestnut Hill, MA, USA.
Günther FinkSwiss Tropical and Public Health Institute, Basel, Switzerland.
Sunita PereiraTufts Medical Center, Boston, MA, USA.
Margaret McConnellDepartment of Global Health and Population, Harvard T.H. Chan School of Public Health, 677 Huntington Ave., Building 1, 11th Floor, Boston, MA, 02115, USA.
Harvard Global Health Institute · USBoston College · USSwiss Tropical and Public Health Institute · CHTufts Medical Center · USUniversity of Illinois Chicago · US

Funding

JPAL-MIT Health Care Delivery Initiative N/A
6 · The paper itself

Abstract

backgroundPreterm birth is a leading cause of morbidity and mortality in children under five and often requires a newborn to have an extended stay in a neonatal intensive care unit (NICU). Maternal engagement, such as visiting the NICU to provide kangaroo mother care (KMC), can improve outcomes for preterm infants but requires significant investment of time and resources. This study sought to understand barriers and facilitators to provision of KMC in the NICU.

methodsWe conducted semi-structured in-depth interviews with mothers of preterm infants (N = 20) at a large academic medical center in Massachusetts. A series of open-ended interview questions were designed to elicit all aspects of mothers' experiences and to understand how these experiences influence provision of KMC. All interviews were recorded and transcribed verbatim. We conducted an inductive thematic analysis to identify themes in the data with a focus on the barriers and facilitators of KMC provision in the NICU.

resultsFindings show that engaging in KMC is heavily influenced by the mental, emotional, and physical effects of preterm birth on the birth mother, such as stress around preterm birth and difficulty recovering from birth. These challenges are compounded by structural barriers such as costly accommodations, unreliable transportation, lack of child care, and inadequate maternity leave policies that limit the frequency and duration of KMC and parental ability to provide care.

conclusionsA complex array of mental, emotional, physical, and structural factors determine a mother's ability to visit the NICU and provide kangaroo mother care. Providing social supports, such as improved maternity leave policies and reliable hospital access through child care, accommodation, and transportation services, may address the structural barriers that inhibit KMC, reduce burdensome costs, and improve the health of mothers and their preterm infants.

Indexed as

Infant, PrematureIntensive Care Units, NeonatalKangaroo-Mother Care MethodMother-Child RelationsTertiary Care CentersAdultAttitude to HealthFemaleHealth Services AccessibilityHumansInfant, NewbornInterviews as TopicMassachusettsMothersParental LeavePregnancyCaregivingKangaroo mother careNeonatal intensive care unitPreterm infantQualitative methodsSkin-to-skin contactUnited States

Identifiers

PMID31272398
PMCPMC6610951
OpenAlexW2954987068

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.