ArticleThe Journal of urology2019
Predictors of Psychosocial Distress in Parents of Young Children with Disorders of Sex Development.
Article in The Journal of urology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.
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Who cites it
14 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Post-Traumatic Stress Reactions in Caregivers of Children and Adolescents/Young Adults with Severe Diseases: A Systematic Review of Risk and Protective Factors.International journal of environmental research and public health · 2020Pooled it
- Validation of a parent-reported outcome measure for young boys with a condition affecting sex development (PRO-CSD).Archives of disease in childhood · 2025Article
- Development and validation of a short version of the quality of life-DSD questionnaire for parents of young children with conditions affecting sex development.Endocrine connections · 2024Article
- Trajectories of illness uncertainty among parents of children with atypical genital appearance due to differences of sex development.Journal of pediatric psychology · 2024Article
- Exploratory factor analysis of the Illness Intrusiveness Rating Scale for parents of children with atypical genital appearance due to differences of sex development (DSD).Journal of pediatric psychology · 2024Article
- Adverse Birth Experiences and Parent Adjustment Associated With Atypical Genital Appearance Due to Differences of Sex Development.Journal of pediatric psychology · 2023Article
- Parental Uncertainty Scale Factor Structure in Pediatric DSD With Ambiguous Genitalia.Journal of pediatric psychology · 2023Article
- Factors influencing illness uncertainty in parents of children with congenital adrenal hyperplasia in a developing country: A cross-sectional study.Belitung nursing journal · 2023Article
- Exploring Factors Associated with Decisions about Feminizing Genitoplasty in Differences of Sex Development.Journal of pediatric and adolescent gynecology · 2022Observational
- Prenatal detection and evaluation of differences of sex development: A qualitative interview study of parental perspectives and unmet needs.Prenatal diagnosis · 2022Article
- Mental health status of children with disorders of sexual development and their correlates.Frontiers in public health · 2022Article
- Factor Analysis of the Stigma Scale-Parent Version in Pediatric Disorders/Differences of Sex Development.Stigma and health · 2021Article
- Distress Trajectories for Parents of Children With DSD: A Growth Mixture Model.Journal of pediatric psychology · 2021Article
- Illness Uncertainty Longitudinally Predicts Distress Among Caregivers of Children Born With DSD.Journal of pediatric psychology · 2020Article
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26 authors.
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Abstract
purposeWe evaluated demographic, financial and support predictors of distress for parents of young children with disorders of sex development including atypical genital development, and characterized early parental experiences. This work extends our previous findings to identify those parents at risk for distress. MATERIALS AND
methodsParticipants included mothers (76) and fathers (63) of a child (78) diagnosed with disorders of sex development characterized by moderate to severe genital atypia. Parents completed a demographic questionnaire, measures of anxious and depressive symptoms, quality of life, illness uncertainty and posttraumatic stress symptoms, and rated their satisfaction with the appearance of their child's genitalia.
resultsDepressive and posttraumatic stress symptoms of caregivers were comparable to standardized norms while levels of anxious symptoms were below norms. A subset of parents reported clinically elevated symptoms. Overall 26% of parents reported anxious symptoms, 24% reported depressive symptoms and 17% reported posttraumatic stress symptoms. Levels of illness uncertainty were lower than those of parents of children with other chronic illnesses. Differences by parent sex emerged, with mothers reporting greater distress. Lower income, increased medical care and travel expenses, and having no other children were related to increased psychosocial distress.
conclusionsEarly psychosocial screening is recommended for parents of children with disorders of sex development. Clinicians should be aware that financial burden and lack of previous parenting experience are risk factors for distress.
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