ArticleThe Hastings Center report2019
Genomic Essentialism: Its Provenance and Trajectory as an Anticipatory Ethical Concern.
Article in The Hastings Center report, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed.
- Schoolhouse risk: Can we mitigate the polygenic Pygmalion effect?Acta psychologica · 2024Trial
- Ethical Challenges of Obtaining Informed Consent: Qualitative Research on the Perspectives of Tuberculosis Patients Participating in Human Genomic Research in Ethiopia.Developing world bioethics · 2026Article
- Examining relationships between multifactorial health beliefs and beliefs about the social implications of genetics.Journal of health psychology · 2026Article
- Perceptions of and willingness to participate in genomics research among a U.S. sample.Frontiers in genetics · 2026Article
- Lost in .*VCF Translation. From Data Fragmentation to Precision Genomics: Technical, Ethical, and Interpretive Challenges in the Post-Sequencing Era.Journal of personalized medicine · 2025Review
- The value of large-scale programmes in human genomics.European journal of human genetics : EJHG · 2025Article
- The Geneticization of Education and Its Bioethical Implications.Cambridge quarterly of healthcare ethics : CQ : the international journal of healthcare ethics committees · 2024Article
- Why community consultation matters in genomic research benefit-sharing models.Genome research · 2024Article
- Polygenic scores for social science: Clarification, consensus, and controversy.The Behavioral and brain sciences · 2023Article
- Problems with dystopian representations in genetic futurism.Nature genetics · 2023Article
- The New Precision Stewards?Journal of personalized medicine · 2022Article
- Three decades of ethical, legal, and social implications research: Looking back to chart a path forward.Cell genomics · 2022Article
- Anticipating the ethical, legal, and social implications of human genome research: An ongoing experiment.American journal of medical genetics. Part A · 2021Article
- Comprehension and personal value of negative non-diagnostic genetic panel testing.Journal of genetic counseling · 2021Article
- Structural Racism in the COVID-19 Pandemic: Moving Forward.The American journal of bioethics : AJOB · 2021Article
- Pygmalion in the Genes? On the potentially negative impacts of polygenic scores for educational attainment.Social psychology of education : an international journal · 2021Article
- Teenagers and Precision Psychiatry: A Window of Opportunity.Public health genomics · 2021Article
- Thought Leader Comparisons of Risks in Precision Medicine Research.Ethics & human research · 2020Article
- Nature vs. Nurture in Precision Education: Insights of Parents and the Public.AJOB empirical bioethicsArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
Abstract
Since the inception of large-scale human genome research, there has been much caution about the risks of exacerbating a number of socially dangerous attitudes linked to human genetics. These attitudes are usually labeled with one of a family of genetic or genomic "isms" or "ations" such as "genetic essentialism," "genetic determinism," "genetic reductionism," "geneticization," "genetic stigmatization," and "genetic discrimination." The psychosocial processes these terms refer to are taken to exacerbate several ills that are similarly labeled, from medical racism and psychological fatalism to economic exploitation and social exclusion. But as genomic information becomes more familiar in clinical and research settings as well as other life activities, do we need to continue to worry so much about this family of attitudes and their impact on existing problems? In genomics, the underlying anxiety has been that disclosure of genomic information will trigger a series of (seemingly unavoidable) negative responses that will affect individuals, their families, and their communities at large. The fundamental social challenges that hyperbolic genomic messaging, low genomic literacy, and "folk biology" help sustain remain to be addressed. If we hope to break the cycle of genomic isms and ations, we will have to get better at resisting overinterpretations of the relevance that genomics has for people's future potentials, ancestral vulnerabilities, community memberships, and ethnic affiliations.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.