Evidence map›Paper›PMID 31258956›Full record

ArticleAMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science2019

FHIRCap: Transforming REDCap forms into FHIR resources.

Alejandro Metke-Jimenez, David Hansen

Abstract read
In one paragraph

Article in AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. HL7 FHIR-based tools and initiatives to support clinical research: a scoping review.Journal of the American Medical Informatics Association : JAMIA · 2022
    Article
  5. Review
  6. Review
  7. Article
  8. When past is not a prologue: Adapting informatics practice during a pandemic.Journal of the American Medical Informatics Association : JAMIA · 2020
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Alejandro Metke-JimenezThe Australian eHealth Research Centre, CSIRO, Herston, Queensland, Australia.
David HansenThe Australian eHealth Research Centre, CSIRO, Herston, Queensland, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Clinical trials and studies are increasingly using systems, such as REDCap, to capture data in electronic form. However these tools are not designed to mimic the capture of clinical information for regular clinical care and lack support for sharing the data effectively. In this paper we describe the implementation of a transformation engine, FHIRCap, that allows defining rules to map REDCap forms into FHIR resources. To assess the feasibility of the system, a case study with one of the Australian Genomics clinical demonstration projects was done. The case study showed that the transformation language is flexible enough to handle most of the data being captured in REDCap for a typical clinical trial. A number of design issues in the forms were identified and a series of recommendations were provided to enable a more accurate transformation. These results show that it is possible to transform most data in existing REDCap projects to FHIR resources without having to modify the forms. This is significant because it demonstrates that most data in existing clinical trials and studies can be made available in a standardised manner.

Identifiers

PMID31258956
PMCPMC6568121

What OpenQuestion holds

Textmetadata
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.