Evidence map›Paper›PMID 31251446›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2019

Evaluating community deliberations about health research priorities.

Susan Dorr Goold, Marion Danis, Julia Abelson, Michelle Gornick, Lisa Szymecko, C Daniel Myers, Zachary Rowe, Hyungjin Myra Kim, Cengiz Salman

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed.

  1. Article
  2. Deliberating at a Distance: Evaluating the Feasibility of a Fully Virtual CHAT Exercise Among Low-Income Communities.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  3. Article
  4. Article
  5. Access to novel drugs and therapeutics for children and youth: Eliciting citizens' values to inform public funding decisions.Health expectations : an international journal of public participation in health care and health policy · 2023
    Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. How Would Low-Income Communities Prioritize Medicaid Spending?Journal of health politics, policy and law · 2020
    Article
  11. Evaluating community deliberations about health research priorities.Health expectations : an international journal of public participation in health care and health policy · 2019
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Susan Dorr GooldDepartment of Internal Medicine, Division of General Medicine, Institute for Healthcare Policy and Innovation, Center for Bioethics and Social Sciences in Medicine, Ann Arbor, Michigan.ORCID 0000-0002-0258-9774
Marion DanisWarren Magnuson Clinical Center, National Institutes of Health, Bethesda, Maryland.ORCID 0000-0002-4749-4568
Julia AbelsonDepartment of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, Ontario, Canada.ORCID 0000-0002-2907-2783
Michelle GornickCenter for Bioethics and Social Sciences in Medicine, University of Michigan, Ann Arbor, Michigan.ORCID 0000-0002-3451-8858
Lisa SzymeckoCenter for Bioethics and Social Sciences in Medicine, University of Michigan, Ann Arbor, Michigan.
C Daniel MyersDepartment of Political Science, University of Minnesota, Minneapolis, Minnesota.
Zachary RoweFriends of Parkside, Detroit, Michigan.
Hyungjin Myra KimCenter for Statistical Computation and Research, University of Michigan, Ann Arbor, Michigan.ORCID 0000-0002-0604-8027
Cengiz SalmanCenter for Bioethics and Social Sciences in Medicine, University of Michigan, Ann Arbor, Michigan.

Funding

Deliberative Engagement of Communities in Decisions about Research Spending R01AG040138 · NIA · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI GOOLD, SUSAN DORR · 2011 to 2015
$2.7M
NIA NIH HHS 1RO1AG040138-01NIA NIH HHS R01 AG040138
6 · The paper itself

Abstract

contextEngaging underrepresented communities in health research priority setting could make the scientific agenda more equitable and more responsive to their needs.

objectiveEvaluate democratic deliberations engaging minority and underserved communities in setting health research priorities.

methodsParticipants from underrepresented communities throughout Michigan (47 groups, n = 519) engaged in structured deliberations about health research priorities in professionally facilitated groups. We evaluated some aspects of the structure, process, and outcomes of deliberations, including representation, equality of participation, participants' views of deliberations, and the impact of group deliberations on individual participants' knowledge, attitudes, and points of view. Follow-up interviews elicited richer descriptions of these and also explored later effects on deliberators.

resultsDeliberators (age 18-88 years) overrepresented minority groups. Participation in discussions was well distributed. Deliberators improved their knowledge about disparities, but not about health research. Participants, on average, supported using their group's decision to inform decision makers and would trust a process like this to inform funding decisions. Views of deliberations were the strongest predictor of these outcomes. Follow-up interviews revealed deliberators were particularly struck by their experience hearing and understanding other points of view, sometimes surprised at the group's ability to reach agreement, and occasionally activated to volunteer or advocate.

conclusionsDeliberations using a structured group exercise to engage minority and underserved community members in setting health research priorities met some important criteria for a fair, credible process that could inform policy. Deliberations appeared to change some opinions, improved some knowledge, and were judged by participants worth using to inform policymakers.

Indexed as

Health Status DisparitiesMedically Underserved AreaAdolescentAdultAgedAged, 80 and overCommunity ParticipationFemaleGroup ProcessesHealthcare DisparitiesHumansInterviews as TopicMaleMichiganMiddle AgedMinority Groupscommunity-based participatory researchhealth prioritiesresearch prioritiesresource allocation

Identifiers

PMID31251446
PMCPMC6737773

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.