ArticlePediatrics2019
Neurologic Outcome After Prematurity: Perspectives of Parents and Clinicians.
Article in Pediatrics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
30 citing papers in PubMed.
- Optimistic vs Pessimistic Message Framing in Communicating Prognosis to Parents of Very Preterm Infants: The COPE Randomized Clinical Trial.JAMA network open · 2024Trial
- Communication of Illness Severity to Parents in the Neonatal Intensive Care Unit: A Scoping Review of Communication Characteristics and Prognostic Framing.Children (Basel, Switzerland) · 2026Review
- Parents' perspectives on the use of statistics to convey uncertainty in the NICU: a qualitative analysis.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- Parents' Perceptions of Delays and Disabilities in Their Children Requiring Invasive Mechanical Ventilation.Pediatric pulmonology · 2026Article
- Parental involvement in neonatal decision-making: a narrative review.Frontiers in pediatrics · 2026Review
- Parental Values During Tracheostomy Decision-Making for Their Critically Ill Child: Interviews of Parents Who Just Made the Decision.Children (Basel, Switzerland) · 2025Article
- Parental Perspectives on Development in Children Born Extremely Preterm.The Journal of pediatrics · 2025Article
- Prediction of Neurodevelopmental Outcomes in Very Preterm Infants: Comparing Machine Learning Methods to Logistic Regression.Children (Basel, Switzerland) · 2024Article
- Article
- Prognostic Discordance Among Parents and Physicians Caring for Infants with Neurologic Conditions.The Journal of pediatrics · 2023Observational
- Affirming Perspectives About Quality-of-Life With Caregivers of Children With Severe Neurological Impairment.Pediatric neurology · 2023Article
- Crossroads of parental decision making: Intersections of hope, communication, relationships, and emotions.Journal of child health care : for professionals working with children in the hospital and community · 2023Article
- Seminars in Fetal & neonatal medicine: Palliative and end of life care in the NICU.Seminars in fetal & neonatal medicine · 2023Review
- Developing a resiliency model for survival without major morbidity in preterm infants.Journal of perinatology : official journal of the California Perinatal Association · 2023Article
- The ALIGN Framework: A Parent-Informed Approach to Prognostic Communication for Infants With Neurologic Conditions.Neurology · 2023Article
- Neonatal neuropalliative care.Handbook of clinical neurology · 2023Review
- Prognostic Discussion for Infants with Neurologic Conditions: Qualitative Analysis of Family Conferences.Annals of neurology · 2022Article
- Isolated and On Guard: Preparing Neonatal Intensive Care Unit Families for Life with Hydrocephalus.American journal of perinatology · 2022Article
- Longitudinal medical needs for periviable NICU survivors.Early human development · 2022Article
- Communicating With Families of Children With Severe Neurological Impairment.Journal of pain and symptom management · 2022Article
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
backgroundParents and clinicians caring for premature infants face high-stakes and time-sensitive decisions about care. We aimed to characterize how parents and clinicians discuss outcome in the context of decision-making for premature infants.
methodsIn this qualitative descriptive study, we used a case-based, prospective design. Cases of extreme prematurity were targeted. Parents and clinicians completed semistructured interviews about care decisions longitudinally in the first year of life. Interview data were analyzed by using directed content analysis.
resultsSixteen parents and 53 clinicians of 10 infants completed 178 interviews (
conclusionsParents and clinicians discuss and weigh information about the future differently from each other as they consider choices for extremely premature infants. Future work should characterize the impact of these differences on prognostic communication and decision-making.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.