Evidence map›Paper›PMID 31245605›Full record

ArticleLearning health systems2019

Cross-Network Directory Service: Infrastructure to enable collaborations across distributed research networks.

Jessica M Malenfant, Jenny Hochstadt, Bridget Nolan, Kimberly Barrett, Dean Corriveau, Daniel Dee, Marcelline Harris, Chayim Herzig-Marx, Vinit P Nair, Zachary Wyner and 1 more

Abstract read
In one paragraph

Article in Learning health systems, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Observational
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Jessica M MalenfantDepartment of Population Medicine Harvard Pilgrim Health Care Institute Boston Massachusetts.ORCID https://orcid.org/0000-0001-8381-4496
Jenny HochstadtDepartment of Population Medicine Harvard Pilgrim Health Care Institute Boston Massachusetts.
Bridget NolanDepartment of Population Medicine Harvard Pilgrim Health Care Institute Boston Massachusetts.
Kimberly BarrettDepartment of Population Medicine Harvard Pilgrim Health Care Institute Boston Massachusetts.
Dean CorriveauAvacoda LLC Amherst Massachusetts.
Daniel DeeAvacoda LLC Amherst Massachusetts.
Marcelline HarrisSchool of Nursing, University of Michigan Ann Arbor Michigan.
Chayim Herzig-MarxDepartment of Population Medicine Harvard Pilgrim Health Care Institute Boston Massachusetts.
Vinit P NairGovernment & Academic Research, Humana, Inc., Comprehensive Health Insights Louisville Kentucky.
Zachary WynerDepartment of Population Medicine Harvard Pilgrim Health Care Institute Boston Massachusetts.
Jeffrey S BrownDepartment of Population Medicine Harvard Pilgrim Health Care Institute Boston Massachusetts.

Funding

FDA HHS HHSF223201400030I
6 · The paper itself

Abstract

introductionExisting large-scale distributed health data networks are disconnected even as they address related questions of healthcare research and public policy. This paper describes the design and implementation of a fully functional prototype open-source tool, the Cross-Network Directory Service (CNDS), which addresses much of what keeps distributed networks disconnected from each other.

methodsThe set of services needed to implement a Cross-Directory Service was identified through engagement with stakeholders and workgroup members. CNDS was implemented using PCORnet and Sentinel network instances and tested by participating data partners.

resultsWeb services that enable the four major functional features of the service (registration, discovery, communication, and governance) were developed and placed into an open-source repository. The services include a robust metadata model that is extensible to accommodate a virtually unlimited inventory of metadata fields, without requiring any further software development. The user interfaces are programmatically generated based on the contents of the metadata model.

conclusionThe CNDS pilot project gathered functional requirements from stakeholders and collaborating partners to build a software application to enable cross-network data and resource sharing. The two partners-one from Sentinel and one from PCORnet-tested the software. They successfully entered metadata about their organizations and data sources and then used the Discovery and Communication functionality to find data sources of interest and send a cross-network query. The CNDS software can help integrate disparate health data networks by providing a mechanism for data partners to participate in multiple networks, share resources, and seamlessly send queries across those networks.

Indexed as

cross‐network communicationcross‐network discoverydata network infrastructuredistributed health data networksnetwork ecosystemnetwork interoperability

Identifiers

PMID31245605
PMCPMC6508802

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.