Evidence map›Paper›PMID 31245579›Full record

ArticleLearning health systems2018

The TRANSFoRm project: Experience and lessons learned regarding functional and interoperability requirements to support primary care.

Jean-François Ethier, Mark McGilchrist, Adrien Barton, Anne-Marie Cloutier, Vasa Curcin, Brendan C Delaney, Anita Burgun

Abstract read
In one paragraph

Article in Learning health systems, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
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  11. A framework for value-creating learning health systems.Health research policy and systems · 2019
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Jean-François EthierDepartment of Medicine, Faculty of Medicine and Health Sciences Université de Sherbrooke Sherbrooke Canada.ORCID 0000-0001-9408-0109
Mark McGilchristDivision of Population Health Sciences University of Dundee Dundee UK.
Adrien BartonDepartment of Medicine, Faculty of Medicine and Health Sciences Université de Sherbrooke Sherbrooke Canada.
Anne-Marie CloutierDepartment of Medicine, Faculty of Medicine and Health Sciences Université de Sherbrooke Sherbrooke Canada.
Vasa CurcinDivision of Health and Social Care Research, Faculty of Life Sciences and Medicine King's College London London UK.
Brendan C DelaneyDepartment of Surgery and Cancer, Faculty of Medicine Imperial College London London UK.ORCID 0000-0002-3518-0131
Anita BurgunINSERM UMR 1138 team 22 Centre de Recherche des Cordeliers, Faculté de médecine Université Paris Descartes-Sorbonne Paris Cité Paris France.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionThe current model of medical knowledge production, transfer, and application suffers from serious shortcomings. Learning health systems (LHS) have recently emerged as a potential solution-systems in which health information generated from patients is continuously analyzed to improve knowledge that will be transferred to patient care.

methodVarious approaches of data integration already exist and could be considered for the implementation of a LHS. We discuss what are the possible informatics approaches to address the functional requirements of LHS, in the specific context of primary care, and present the experience and lessons learned from the TRANSFoRm project.

resultImplemented in 4 countries around 5 systems, TRANSFoRm is based on a local-as-view data mediation approach integrating the structural and terminological models in the same framework. It clearly demonstrated that it has the potential to address the requirements for a LHS in primary care, by dealing with data fragmented across multiple points of service. Also, it has the potential to support the generation of hypotheses from the context of clinical care, retrospective and prospective research, and decision support systems that improve the relevance of medical decisions.

conclusionThe LHS approach embodies a shift from an institution-centered to a patient-centered perspective in knowledge production and transfer and can address important challenges in the primary care setting.

Indexed as

interoperabilitylearning health systemprimary carerequirementsTRANSFoRm project

Identifiers

PMID31245579
PMCPMC6508823

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.