ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2020
Advance care planning in glioblastoma patients: development of a disease-specific ACP program.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 3 of them syntheses that pooled it.
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Who cites it
26 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Defining end-of-life in glioblastoma multiforme: a systematic review.Journal of neuro-oncology · 2025Pooled it
- Palliative care in glioblastoma patients: a systematic review.Revista da Associacao Medica Brasileira (1992) · 2024Pooled it
- Palliative care and end-of-life care in adults with malignant brain tumors.Neuro-oncology · 2023Pooled it
- Neuropalliative care in brain cancer.Clinical medicine (London, England) · 2026Review
- Staging prognostic discussions about glioblastoma.Journal of neuro-oncology · 2026Review
- What is the appropriate timing for advance care planning according to patients and their relatives? A scoping review.PloS one · 2026Article
- Documented advance care planning elements and end-of-life care patterns in malignant glioma vs. major solid tumors: a single-center retrospective study.Journal of neuro-oncology · 2025Article
- End-of-life care in patients with glioblastoma after early advance care planning.Neuro-oncology practice · 2025Article
- Prospective assessment of end-of-life symptoms and quality of life in patients with high-grade glioma.Neuro-oncology practice · 2024Article
- Current status of advance care planning, palliative care consultation, and end-of-life care in patients with glioblastoma in South Korea.The oncologist · 2024Article
- A Joanna Briggs Institute Framework Approach to Shared Decision Making in End-of-Life.Health expectations : an international journal of public participation in health care and health policy · 2024Review
- Pattern of care of brain tumor patients in the last months of life: analysis of a cohort of 3045 patients in the last 10 years.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2023Article
- Communication in the context of glioblastoma treatment: A qualitative study of what matters most to patients, caregivers and health care professionals.Palliative medicine · 2023Article
- Advance care planning (ACP) in glioblastoma patients: Evaluation of a disease-specific ACP program and impact on outcomes.Neuro-oncology practice · 2022Article
- Evaluation of an online tool about the expected course of disease for glioblastoma patients-A qualitative study.Neuro-oncology practice · 2022Article
- A model for the uptake of advance care planning in older cancer adults: a scoping review.Aging clinical and experimental research · 2022Article
- Easing the Journey-an Updated Review of Palliative Care for the Patient with High-Grade Glioma.Current oncology reports · 2022Review
- Practical guidance for telemedicine use in neuro-oncology.Neuro-oncology practice · 2022Review
- Advance Care Planning in Neurodegenerative Disorders: A Scoping Review.International journal of environmental research and public health · 2022Article
- Ethics consultations in neuro-oncology.Neuro-oncology practice · 2021Article
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
backgroundIt is unknown if the implementation of an advance care planning (ACP) program is feasible in daily clinical practice for glioblastoma patients. We aimed to develop an ACP program and assess the preferred content, the best time to introduce such a program in the disease trajectory, and possible barriers and facilitators for participation and implementation.
methodsA focus group with health care professionals (HCPs) and individual semi-structured interviews with patients and proxies (of both living and deceased patients) were conducted.
resultsAll predefined topics were considered relevant by participants, including the current situation, worries/fears, (supportive) treatment options, and preferred place of care/death. Although HCPs and proxies of deceased patients indicated that the program should be implemented relatively early in the disease trajectory, patient-proxy dyads were more ambiguous. Several patient-proxy dyads indicated that the program should be initiated later in the disease trajectory. If introduced early, topics about the end of life should be postponed. A frequently mentioned barrier for participation was that the program would be too confronting, while a facilitator was adequate access to information.
conclusionThis study resulted in an ACP program specifically for glioblastoma patients. Although participants agreed on the program content, the optimal timing of introducing such a program was a matter of debate. Our solution is to offer the program shortly after diagnosis but let patients and proxies decide which topics they want to discuss and when. The impact of the program on several patient- and care-related outcomes will be evaluated in the next step.
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