ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2020
Determinants of quality of life among family caregivers of adult cancer patients in a resource-limited setting.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 2 of them syntheses that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
22 citing papers in PubMed, 2 syntheses or guidelines pooled it, 34 citations in OpenAlex.
- Systematic review of psychosocial interventions for adult cancer patients and their family caregivers in Sub-Saharan Africa.Global public health · 2023Pooled it
- What constitutes a palliative care need in people with serious illnesses across Africa? A mixed-methods systematic review of the concept and evidence.Palliative medicine · 2021Pooled it
- Translating Evidence-Based Self-Management Interventions Using a Stepped-Care Approach for Patients With Cancer and Their Caregivers: A Pilot Sequential Multiple Assignment Randomized Trial Design.Psycho-oncology · 2025Trial
- Psychosocial Health Experiences and Coping Strategies of Family Caregivers of Adults With Cancer: A Qualitative Study.Health science reports · 2026Article
- Burden and quality of life among caregivers of children diagnosed with cancer at Kenyatta National Hospital, Kenya: A cross-sectional study.Palliative care and social practice · 2026Article
- Navigating the emotional landscape: exploring caregivers' journey alongside breast cancer survivors with chronic pain.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- "Times of war and time of uncertain peace": Narratives of parents of childhood cancer survivors.Revista latino-americana de enfermagem · 2024Article
- Quality of life and factors associated among caregivers of adolescent and young adult Ebola survivors in Democratic Republic of the Congo, a cross-sectional study.BMC public health · 2023Article
- Cancer Pain Experience Through the Lens of Patients and Caregivers: Mixed Methods Social Media Study.JMIR cancer · 2023Article
- Adult sibling-related experiences while caring for a parent diagnosed with a blood cancer.Families, systems & health : the journal of collaborative family healthcare · 2023Article
- Factors related to the quality of life of family cancer caregivers.Frontiers in psychiatry · 2023Article
- The roles and experiences of informal carers providing care to people with advanced cancer in Africa-A systematic review and critical interpretive analysis.PLOS global public health · 2023Article
- Quality of life and related factors in caregivers of children with cancer in Iran.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- A Comprehensive Analysis of the Cancer Chronic Pain Experience: A Narrative Review.Cancer management and research · 2022Review
- Article
- Quality of life among patients with cancer and their family caregivers in the Sub-Saharan region: A systematic review of quantitative studies.PLOS global public health · 2022Article
- Factors effecting quality of life for family caregivers of cancer patients in Kenya.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2022Article
- Effectiveness of Multicomponent Intervention on Quality of Life of Family Caregivers of Cancer Patients.Asian Pacific journal of cancer prevention : APJCP · 2021Article
- Self-efficacy in caregivers of adults diagnosed with cancer: An integrative review.European journal of oncology nursing : the official journal of European Oncology Nursing Society · 2021Review
- "Home wasn't really home anymore": Understanding caregivers' perspectives of the impact of blood cancer caregiving on the family system.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
Corrections and comments
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Authors and funding
2 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeIn resource-limited settings, family caregivers (FCGs) of adult cancer patients (ACPs) function in a context marred by high patient symptom burden, limited cancer care services and support and high caregiving burden. Despite this predicament, little is known about the quality of life (QoL) of FCGs in these settings. The study aimed to explore the determinants of QoL among FCGs of ACPs in Uganda.
methodsA cross-sectional design was used to collect data from 284 FCGs of ACPs. The study questionnaire was composed of the Katz Index, Family Pain Questionnaire, modified Chronic Pain Self-efficacy Scale and the Caregiver Quality of Life-Index-Cancer.
resultsThe mean age of FCGs was 36 ± 13.8 years. Most ACPs had stage 3 or 4 cancer (56%), severe pain (66.2%), reported moderate pain relief (51.1%) and were on chemotherapy (60.9%). The overall QoL of FCGs (70.2 ± 20.3) was moderate and 46.8% had low QoL. Most FCGs had high positive adaptation or financial concerns (55.3%) and low QoL in terms of burden (50.7%), disruptiveness (53.5%) and support (56.7%). The main determinants of overall QoL were FCGs' knowledge and self-eficacy for cancer pain management. The determinants of burden, disruptiveness, support and positive adaptations and financial concerns are reported.
conclusionThe key determinants of the QoL of FCGs were knowledge and self-efficacy for cancer pain management. In Uganda and similar settings, interventions to build FCGs capacity in cancer-related pain and other symptom management may help to enhance the QoL of FCGs and the ACPs.
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