Evidence map›Paper›PMID 31238172›Full record

Trial reportContemporary clinical trials2019

Embedding caregiver support in community-based services for older adults: A multi-site randomized trial to test the Adult Day Service Plus Program (ADS Plus).

Laura N Gitlin, Katherine Marx, Daniel Scerpella, Holly Dabelko-Schoeny, Keith A Anderson, Jin Huang, Laura Pizzi, Eric Jutkowitz, David L Roth, Joseph E Gaugler

Registry-linked trialAbstract readMulticenter StudyRandomized Controlled Trial
In one paragraph

Trial report in Contemporary clinical trials, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02927821 (Improving Outcome for Family Caregivers of Older Adults With Complex Conditions), which is not on this map. Cited by 26 papers.

0numbers the graph read from it
0cells of the map it votes in
26citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT02927821 nacompletednot on this map

Improving Outcome for Family Caregivers of Older Adults With Complex Conditions: The Adult Day Plus (ADS Plus) Program

TypeinterventionalSponsorJohns Hopkins UniversityRan2016 to 2024Enrolled208ConditionsStressArmsADS Plus
3 · Its place in the literature

Who cites it

26 citing papers in PubMed.

  1. Trial
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  4. Implications of the COVID-19 Pandemic on Adult Day Services and the Families They Serve.American journal of Alzheimer's disease and other dementias
    Trial
  5. Article
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  7. How did the Sudden Closures of Adult Day Services During COVID-19 Impact Dementia Care Dyads?Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025
    Article
  8. Article
  9. Article
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  12. Article
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  18. COVID-19 and the Need for Adult Day Services.Journal of the American Medical Directors Association · 2021
    Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Laura N GitlinDrexel University, 1601 Cherry Street, 10th Floor, Room 1092, Philadelphia, PA 19102, United States of America. Electronic address: Lng45@drexel.edu.
Katherine MarxJohns Hopkins School of Nursing, Center for Innovative Care in Aging, 901 N. Broadway, Room 214, Baltimore, MD 21205, United States of America. Electronic address: kmarx1@jhu.edu.
Daniel ScerpellaJohns Hopkins School of Nursing, Center for Innovative Care in Aging, 901 North Broadway, 2nd Floor, Baltimore, MD 21205, United States of America. Electronic address: dscerpe1@jhu.edu.
Holly Dabelko-SchoenyCollege of Social Work, 207 Stillman Hall, 1947 College Rd N., Columbus, OH 43210, United States of America. Electronic address: dabelko-schoeny.1@csw.osu.edu.
Keith A AndersonUniversity of Montana, School of Social Work, 014 Jeannette Rankin Hall, 32 Campus Drive, Missoula, MT 59812-4392, United States of America. Electronic address: keith.anderson@mso.umt.edu.
Jin HuangJohns Hopkins School of Medicine, Center on Aging and Health, 2024 East Monument Street, Baltimore, MD 21205, United States of America. Electronic address: j.huang@jhu.edu.
Laura PizziUniversity Ernest Mario School of Pharmacy, Center for Health Outcomes, Policy, and Economics, 160 Frelinghuysen Road - Suite 417, Piscataway, NJ 08854, United States of America. Electronic address: laura.pizzi@rutgers.edu.
Eric JutkowitzBrown University School of Public Health, Department of Health Services, Policy & Practice, BoxG-S121 (6), 121 S Main Street, Providence, RI 02912, United States of America. Electronic address: jutkowitz@brown.edu.
David L RothJohns Hopkins School of Medicine, Center on Aging and Health, 2024 East Monument Street, Baltimore, MD 21205, United States of America. Electronic address: droth@jhu.edu.
Joseph E GauglerUniversity of Minnesota, School of Nursing, 308 SE Harvard St, Minneapolis, MN 55455, United States of America. Electronic address: gaug0015@umn.edu.

Funding

Improving Outcomes for Family Caregivers and Older Adults with Complex Conditions: The Adult Day Service Plus ProgramR01AG049692 · NIA · JOHNS HOPKINS UNIVERSITY · PI GAUGLER, JOSEPH E., GITLIN, LAURA N. · 2016 to 2020
$4.9M
NIA NIH HHS R01 AG049692
6 · The paper itself

Abstract

There are over five million people in the United States living with dementia. Most live at home and are cared for by family. These family caregivers often assume care responsibilities without education about the disease, skills training, or support, and in turn become at risk for depression, burden, and adverse health outcomes when compared to non-dementia caregivers. Despite over 200 caregiver interventions with proven benefits, many caregivers lack access to these programs. One approach to enhance access is to embed evidence-based caregiver support programs in existing community-based services for people with dementia such as adult day services (ADS). Here we describe the protocol for an embedded pragmatic trial designed to augment standard ADS known as ADS Plus. ADS Plus provides family caregivers with support via education, referrals, and problem-solving techniques over 12 months, and is delivered on-site by existing ADS staff. Embedding a program in ADS requires an understanding of outcomes and implementation processes in that specific context. Thus, we deploy a hybrid design involving a cluster randomized two-group trial to evaluate treatment effects on caregiver wellbeing, ADS utilization, as well as nursing home placement. We describe implementation practices in 30 to 50 geographically and racially/ethnically diverse participating sites. Clinical trial registration #: NCT02927821.

Indexed as

CaregiversDementiaPsychosocial Support SystemsQuality of LifeAdult Day Care CentersAgedBurnout, PsychologicalCommunity NetworksConsumer Health InformationDepressionFemaleHealth Services AccessibilityHumansIndependent LivingMalePragmatic Clinical Trials as TopicActivitiesDementiaFamily caregivingNeuropsychological behaviorsOccupational therapyPsychosocial intervention

Identifiers

PMID31238172
PMCPMC7069225

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.