Evidence map›Paper›PMID 31229952›Full record

ArticleAnnals of the rheumatic diseases2020

EULAR points to consider for the use of big data in rheumatic and musculoskeletal diseases.

Laure Gossec, Joanna Kedra, Hervé Servy, Aridaman Pandit, Simon Stones, Francis Berenbaum, Axel Finckh, Xenofon Baraliakos, Tanja A Stamm, David Gomez-Cabrero and 4 more

Open access · hybridAbstract readConsensus Statement
PubMed Publisher
In one paragraph

Article in Annals of the rheumatic diseases, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 40 papers, 6 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
40citing papers in PubMed, 6 pooled it
4.2field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

40 citing papers in PubMed, 6 syntheses or guidelines pooled it, 82 citations in OpenAlex.

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  2. Digitalization and disruptive change in rheumatology.Zeitschrift fur Rheumatologie · 2023
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4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

14 authors at 9 institutions in 9 countries.

Laure Gossec *Institut Pierre Louis d'Epidémiologie et de Santé Publique, INSERM, Sorbonne Universite, Paris, France laure.gossec@gmail.com.ORCID 0000-0002-4528-310X
Joanna Kedra *Institut Pierre Louis d'Epidémiologie et de Santé Publique, INSERM, Sorbonne Universite, Paris, France.ORCID 0000-0003-3535-3183
Hervé ServySanoïa, e-Health services, Gardanne, France.
Aridaman PanditDept of Rheumatology, Clinical Immunology and Laboratory of Translational Immunology, Universitair Medisch Centrum Utrecht, Utrecht, The Netherlands.ORCID 0000-0003-2057-9737
Simon StonesSchool of Healthcare, University of Leeds, Leeds, UK.
Francis BerenbaumRheumatology, St Antoine Hospital, Sorbonne Université, INSERM, Paris, France.ORCID 0000-0001-8252-7815
Axel FinckhDivision of Rheumatology, University of Geneva, Geneva, Switzerland.
Xenofon BaraliakosRheumazentrum Ruhrgebiet Sankt Josefs-Krankenhaus, Herne, Germany.
Tanja A StammSection for Outcomes Research, Center for Medical Statistics, Informatics, and Intelligent Systems, Medical University of Vienna, Vienna, Austria.ORCID 0000-0003-3073-7284
David Gomez-CabreroTranslational Bioinformatics Unit, Navarra Biomed, Departamento de Salud-Universidad Públicade Navarra, Pamplona, Navarra, Spain.ORCID 0000-0003-4186-3788
Christian PristipinoOspedale San Filippo Neri, Rome, Italy.
Remy ChoquetOrange Healthcare, INSERM U1142, Paris, France.
Gerd R BurmesterRheumatology and Clinical Immunology, Charité University Hospital, Berlin, Germany.
Timothy R D J RadstakeDept of Rheumatology, Clinical Immunology and Laboratory of Translational Immunology, Universitair Medisch Centrum Utrecht, Utrecht, The Netherlands.
Inserm · FRUniversity Medical Center Utrecht · NLCenter for Rheumatology · USOspedale San Filippo Neri · ITRheumazentrum Ruhrgebiet · DEStatistics Austria · ATUniversidad Publica de Navarra · ESUniversity of Geneva · CHUniversity of Leeds · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundTremendous opportunities for health research have been unlocked by the recent expansion of big data and artificial intelligence. However, this is an emergent area where recommendations for optimal use and implementation are needed. The objective of these European League Against Rheumatism (EULAR) points to consider is to guide the collection, analysis and use of big data in rheumatic and musculoskeletal disorders (RMDs).

methodsA multidisciplinary task force of 14 international experts was assembled with expertise from a range of disciplines including computer science and artificial intelligence. Based on a literature review of the current status of big data in RMDs and in other fields of medicine, points to consider were formulated. Levels of evidence and strengths of recommendations were allocated and mean levels of agreement of the task force members were calculated.

resultsThree overarching principles and 10 points to consider were formulated. The overarching principles address ethical and general principles for dealing with big data in RMDs. The points to consider cover aspects of data sources and data collection, privacy by design, data platforms, data sharing and data analyses, in particular through artificial intelligence and machine learning. Furthermore, the points to consider state that big data is a moving field in need of adequate reporting of methods and benchmarking, careful data interpretation and implementation in clinical practice.

conclusionThese EULAR points to consider discuss essential issues and provide a framework for the use of big data in RMDs.

Indexed as

Big DataMusculoskeletal DiseasesRheumatic DiseasesRheumatologyConfidentialityData AnalysisData CollectionEvidence-Based MedicineHumansInformation DisseminationInformation Storage and RetrievalMachine Learningepidemiologyhealth services researchoutcomes research

Identifiers

PMID31229952
OpenAlexW2949769604

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.