Evidence map›Paper›PMID 31220594›Full record

ArticleJournal of pain and symptom management2019

Development of a Pediatric Palliative Care Curriculum and Dissemination Model: Education in Palliative and End-of-Life Care (EPEC) Pediatrics.

Stefan J Friedrichsdorf, Stacy Remke, Joshua Hauser, Laurie Foster, Andrea Postier, Alison Kolste, Joanne Wolfe

Open access · greenAbstract read
In one paragraph

Article in Journal of pain and symptom management, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
26citing papers in PubMed, 1 pooled it
14.2field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

26 citing papers in PubMed, 1 synthesis or guideline pooled it, 76 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Paediatric palliative care in cancer.Ecancermedicalscience · 2024
    Review
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. Review
  17. Article
  18. Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 4 institutions in 1 country.

Stefan J FriedrichsdorfDepartment of Pain Medicine, Palliative Care and Integrative Medicine, Children's Hospitals and Clinics of Minnesota, Minneapolis, Minnesota, USA; Department of Pediatrics, University of Minnesota, Minneapolis, Minnesota, USA. Electronic address: Stefan.Friedrichsdorf@childrensMN.org.
Stacy RemkeDepartment of Pain Medicine, Palliative Care and Integrative Medicine, Children's Hospitals and Clinics of Minnesota, Minneapolis, Minnesota, USA; University of Minnesota School of Social Work, St. Paul, Minnesota, USA.
Joshua HauserDepartment of Medicine (Palliative Medicine), Northwestern Feinberg School of Medicine, Chicago, Illinois, USA; Jesse Brown VA Medical Center, Chicago, Illinois, USA.
Laurie FosterUniversity of Minnesota School of Public Health, Minneapolis, Minnesota, USA.
Andrea PostierDepartment of Pain Medicine, Palliative Care and Integrative Medicine, Children's Hospitals and Clinics of Minnesota, Minneapolis, Minnesota, USA.
Alison KolsteDepartment of Pain Medicine, Palliative Care and Integrative Medicine, Children's Hospitals and Clinics of Minnesota, Minneapolis, Minnesota, USA.
Joanne WolfeDana-Farber Cancer Institute, Boston, Massachusetts, USA; Boston Children's Hospital, Boston, Massachusetts, USA.
University of Minnesota · USChildren’s Minnesota - St. Paul Hospital · USBoston Children's Hospital · USNorthwestern University · US

Funding

Development & Dissemination of Education in Pediatric Palliative CareR25CA151000 · NCI · CHILDREN'S HOSPITALS AND CLINICS · PI FRIEDRICHSDORF, STEFAN J · 2010 to 2014
$1.6M
NCI NIH HHS R25 CA151000NCI NIH HHS R25 CA151000-01
6 · The paper itself

Abstract

contextMost children living and dying with serious illnesses experience high burden of distressing symptoms. Many seriously ill children and their families do not have access to subspecialist pediatric palliative care (PPC) services nor to clinicians trained in primary PPC. Lack of PPC education appears to be a significant barrier to PPC implementation.

objectivesDescription of the development and dissemination of Education in Palliative and End-of-Life Care (EPEC)-Pediatrics.

methodsFunded through a U.S. $1.6 million National Institutes of Health/National Cancer Institute grant 2010-2017, this 24-module curriculum was designed to teach primary palliative care. The target audience included interprofessional pediatric hematology/oncology providers and all other clinicians caring for seriously ill children.

resultsThe curriculum is delivered in a combination of online learning and in-person, face-to-face sessions. In addition, a one-day Professional Development Workshop was developed to teach EPEC-Pediatrics graduates, future "Trainers," thus becoming "Master Facilitators." Between 2012-May 2019, a total of 867 EPEC-Pediatric Trainers and 75 Master Facilitators from 58 countries participated in 17 Become an EPEC-Pediatrics-Trainer conferences and three Professional Development Workshops. The curriculum has also been adapted for large-scale dissemination across Canada and Latin-America, with translation to French and Spanish. Participants overwhelmingly report improvements in their PPC knowledge, attitudes, and skills, including teaching. Trainers subsequently anticipated improvements in patient care for children with serious illness at their home institutions.

conclusionEPEC-Pediatrics has developed into the most comprehensive PPC curriculum worldwide. It is highly adaptable for local settings, became self-sustaining and six conferences are offered around the world in 2019.

Indexed as

CurriculumEducation, Medical, GraduatePalliative CareProgram DevelopmentTerminal CareHumansModels, EducationalPediatricscurriculumdisseminationeducationPediatric palliative carepost-graduate teachingTrain-the-Trainer

Identifiers

PMID31220594
PMCPMC6754756
OpenAlexW2952767017

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.