ArticleGlobal pediatric health2019
The Experience of Latina Mothers of Children and Youth With Special Health Care Needs: A Qualitative Study.
Article in Global pediatric health, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
2 citing papers in PubMed.
- Social support for family caregivers of children and youth with special health care needs for home care: a scoping review.Revista da Escola de Enfermagem da U S P · 2025Article
- Self-Care Needs and Technology Preferences Among Parents in Marginalized Communities: Participatory Design Study.JMIR pediatrics and parenting · 2021Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Children and youth with special health care needs (CYSHCN) comprise a growing proportion of the pediatric population; the patient- and family-centered medical home provides a comprehensive model for caring for these patients. Given the limited literature available as well as extreme patient vulnerability, we sought to understand the experience of Latino parents in caring for their CYSHCN within our patient-centered medical home in an urban neighborhood in North Philadelphia. A convenience sample of 14 mothers or grandmothers of CYSHCN participated in semistructured interviews, which were analyzed using a thematic, constant comparative approach to identify common themes. Themes identified included "Waiting," "Communication/Trust," "All-Consuming Requirements of Care/Sacrifice," and "Fate/Faith/Blessings." These themes corresponded with identified goals of the patient-centered medical home. Our findings suggest that the principles of the patient-centered medical home can be applied in unique ways to caring for this unique patient population.
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