Evidence map›Paper›PMID 31208417›Full record

ArticleBMC health services research2019

Health care stakeholder perspectives regarding the role of a patient navigator during transition to adult care.

Gina Dimitropoulos, Elizabeth Morgan-Maver, Brooke Allemang, Kyleigh Schraeder, Shannon D Scott, Jorge Pinzon, Gail Andrew, Gregory Guilcher, Lorraine Hamiwka, Eddy Lang and 6 more

Registry-linked trialOpen access · goldAbstract read
In one paragraph

Article in BMC health services research, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06373588 (Co-design and Evaluation of a Patient Navigator Intervention for Migrant Children and Youth with Special Healthcare Needs), which is not on this map. Cited by 19 papers.

0numbers the graph read from it
0cells of the map it votes in
19citing papers in PubMed
4.9field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06373588 narecruitingnot on this mapstarted 2024, after this paper: background citation

Co-design and Evaluation of a Patient Navigator Intervention for Migrant Children and Youth with Special Healthcare Needs (CYSHCN) Experiencing Care Transitions (MiNav Trial)

TypeinterventionalSponsorMcGill University Health Centre/Research Institute of the McGill University Health CentreRan2024 to 2027Enrolled324ConditionsPatient NavigationArmsPatient Navigator
3 · Its place in the literature

Who cites it

19 citing papers in PubMed, 34 citations in OpenAlex.

  1. Article
  2. Article
  3. Article
  4. A Socioecological Approach to Support the Transition to Adult Care for Youth With Medical Complexity: Family Perspectives and Recommendations.Health expectations : an international journal of public participation in health care and health policy · 2025
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  8. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors at 2 institutions in 1 country.

Gina DimitropoulosFaculty of Social Work, Professional Faculties 4212, University of Calgary, 2500 University Dr. NW, Calgary, AB, T2N 1N4, Canada. gdimit@ucalgary.ca.ORCID http://orcid.org/0000-0001-9487-0290
Elizabeth Morgan-MaverUniversity of Calgary, Calgary, Alberta, Canada.
Brooke AllemangFaculty of Social Work, Professional Faculties 4212, University of Calgary, 2500 University Dr. NW, Calgary, AB, T2N 1N4, Canada.
Kyleigh SchraederAlberta Children's Hospital Research Institute, Calgary, Alberta, Canada.
Shannon D ScottFaculty of Nursing, University of Alberta, Edmonton, Alberta, Canada.
Jorge PinzonAlberta Children's Hospital Research Institute, Calgary, Alberta, Canada.
Gail AndrewDepartment of Pediatrics, University of Alberta, Edmonton, Alberta, Canada.
Gregory GuilcherDepartment of Pediatrics, University of Calgary, Calgary, Alberta, Canada.
Lorraine HamiwkaDepartment of Pediatrics, University of Calgary, Calgary, Alberta, Canada.
Eddy LangDepartment of Emergency Medicine, University of Calgary, Calgary, Alberta, Canada.
Kerry McBrienDepartment of Community Health Sciences, University of Calgary, Calgary, Alberta, Canada.
Alberto Nettel-AguirreAlberta Children's Hospital Research Institute, Calgary, Alberta, Canada.
Daniele PacaudAlberta Children's Hospital Research Institute, Calgary, Alberta, Canada.
Lonnie ZwaigenbaumDepartment of Pediatrics, University of Alberta, Edmonton, Alberta, Canada.
Andrew MackieDepartment of Pediatrics, University of Alberta, Edmonton, Alberta, Canada.
Susan SamuelAlberta Children's Hospital Research Institute, Calgary, Alberta, Canada.
University of Calgary · CAUniversity of Alberta · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundTransition to adult care represents a vulnerable period for young people with special health care needs as they navigate multiple life transitions and developmental issues. Patient navigators are a promising intervention designed to facilitate the transfer from pediatric to adult care. However, consistent definitions, key tasks, roles and responsibilities are lacking in guiding the scope of practice and the implementation of patient navigators.

methodsFundamental qualitative description was utilized in this study to identify perceptions from health care providers about implementing a patient navigator service for young people with special health care needs in transition to adult care. A purposive sample of health care providers with a variety of backgrounds within pediatric and adult systems in Alberta, Canada were recruited. Semi-structured interviews with participants were analyzed using thematic analysis to inductively identify perceptions regarding the role of patient navigators.

resultsA total of 43 health care providers highlighted the need for a patient navigator service to encompass 4 key stages for young people with special health care needs transitioning from pediatric to adult services: (1) identification of young people with special health care needs and families requiring support, (2) preparation for transfer, (3) health system navigation and, (4) post-transfer support.

conclusionsThe results of this qualitative study provide guidance for the development of patient navigator interventions for young people with special health care needs, as well as provide support for current transition services offered across Canada.

Indexed as

Health PersonnelStakeholder ParticipationTransition to Adult CareAdolescentChronic DiseaseFemaleHumansMalePatient NavigationQualitative ResearchYoung AdultAdolescentsChronic diseasePatient navigator (PN)Qualitative researchSpecial health care needs (SHCN)Transition age young peopleYoung adults

Identifiers

PMID31208417
PMCPMC6580652
OpenAlexW2949536720

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.