SynthesisBMC geriatrics2019
Motivations for being informal carers of people living with dementia: a systematic review of qualitative literature.
Synthesis in BMC geriatrics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 46 papers, 1 of them a synthesis that pooled it.
What it found
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Who cites it
46 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Chinese diaspora caregivers' experiences in dementia care in high-income countries: A systematic review.Dementia (London, England) · 2023Pooled it
- Experiences and coping strategies of family caregivers caring for people with behavioural and psychological symptoms of dementia: a systematic review of qualitative studies.International journal of nursing studies advances · 2026Review
- Needs, resources, and barriers among family caregivers of people with dementia: a qualitative study.Aging clinical and experimental research · 2026Article
- Latino family caregivers: "it's what we do-we take care of our own".The journals of gerontology. Series B, Psychological sciences and social sciences · 2026Article
- Supporting the Caregivers of Children With Developmental Disabilities in a Low-Resource Setting: What Are Their Needs?Journal of applied research in intellectual disabilities : JARID · 2026Article
- Preserving togetherness or ensuring safety? The dilemma of where to live and receive dementia care.BMC geriatrics · 2026Article
- Evolution of Chatbots as an Educational and Supportive Digital Intervention for Family Caregivers of People With Dementia: Protocol for a Systematic Integrative Review.JMIR research protocols · 2026Article
- Care Deliberations of Family Carers of People Living With Dementia-Applying an Affective-Discursive Practices Approach.Sociology of health & illness · 2026Article
- Positive and Negative Appraisals and Quality of Life Among Family Caregivers of Adults With Formal Long-Term Care Needs: An Exploration of Model Using Structural Equation Modelling.Journal of clinical nursing · 2026Article
- Niece and nephew dementia caregivers: family relationships and care dynamics.The Gerontologist · 2025Article
- Family caregivers' perceptions of quality of dementia self-care in Wakiso district, Uganda.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Sleep at home for older persons with dementia and their caregivers: a qualitative study of their experiences and challenges.European journal of ageing · 2025Article
- Article
- The significance of a dementia diagnosis from the perspective of the family caregivers: a qualitative study.BMC health services research · 2025Article
- Caregiving in the face of empathy loss in Frontotemporal Dementia: an integrative review.Aging & mental health · 2025Review
- Motivated to care: latent classes of caregiver motivation as moderators among stress, resources, and well-being.Frontiers in psychology · 2025Article
- Article
- Sense of Coherence and Caregiver Burden Among Informal Caregivers of People with Dementia in China: The Mediating Role of Coping Strategies.Psychology research and behavior management · 2025Article
- Determinants of trajectories of informal caregiving in later life: evidence from England.European journal of ageing · 2024Article
- 'Caring beyond capacity' during the coronavirus pandemic: resilience and family carers of people with dementia from the IDEAL cohort.International journal of care and caring · 2024Article
Corrections and comments
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundInformal, often family carers play a vital role in supporting people living with dementia in the community. With ageing populations, the part played by these carers is increasing making it important that we understand what motivates them to take on the role. This systematic review aimed to identify and synthesise qualitative literature describing what motivates people to care for someone with dementia.
methodsThe review followed the Centre for Reviews and Dissemination (CRD) guidelines. Six electronic databases were searched from their first records until August 2018. Synthesis was narrative.
resultsTwenty-six studies fitting the inclusion criteria were identified. Carers described multiple, inter-related motives for caring for someone with dementia. Caring was generally described as a reflection of long-standing family relationships between carers and the care recipients, whether by blood or marriage. Commonly offered motivations included love, reciprocity, filial piety, duty and obligation.
conclusionsPerhaps the most striking finding was the similarity in these motivations irrespective of gender or relationship with the care recipient. Family relationship and shared history underlay most motivations. Future research should include more longitudinal studies incorporating within study comparisons between different demographic groups to give greater confidence in identifying similarities and differences between demographic groups.
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