Evidence map›Paper›PMID 31206072›Full record

ArticleBMJ paediatrics open2019

Exploring communication between parents and clinical teams following children's heart surgery: a survey in the UK.

Christina Pagel, Catherine Bull, Martin Utley, Jo Wray, David J Barron, Serban Stoica, Shane M Tibby, Victor Tsang, Katherine L Brown

Open access · diamondAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMJ paediatrics open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
2.0field-weighted citation impact, top 15% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 9 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 5 institutions in 1 country.

Christina PagelClinical Operational Research Unit, University College London, London, UK.ORCID 0000-0002-2857-1628
Catherine BullDepartment of Paediatric Intensive Care, Great Ormond Street Hospital NHS Foundation Trust, London, UK.
Martin UtleyClinical Operational Research Unit, University College London, London, UK.
Jo WrayHeart and Lung Division, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.
David J BarronDepartment of Intensive Care and Paediatric Cardiac Surgery, Birmingham Children's Hospital NHS Foundation Trust, Birmingham, UK.
Serban StoicaDepartment of Intensive Care and Paediatric Cardiac Surgery, Bristol Children's Hospital, Bristol, UK.
Shane M TibbyDepartment Paediatric Cardiology and Cardiac Surgery, Evelina London Children's Hospital, Guy's and St Thomas' NHS Foundation Trust, London, UK.ORCID 0000-0001-7774-8656
Victor TsangHeart and Lung Division, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.
Katherine L BrownHeart and Lung Division, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.
Great Ormond Street Hospital for Children NHS Foundation Trust · GBBirmingham Children's Hospital · GBBristol Royal Hospital for Children · GBGuy's and St Thomas' NHS Foundation Trust · GBUniversity College London · GB

Funding

Department of Health 12/5005/06
6 · The paper itself

Abstract

objectiveTo explore communication between clinicians and families of children undergoing heart surgery.

designThis study was part of a larger study to select, define and measure the incidence of postoperative complications in children undergoing heart surgery. Parents of children recruited to a substudy between October 2015 and December 2017 were asked to complete a questionnaire about communication during their child's inpatient stay. We explored all responses and then disaggregated by the following patient characteristics: presence of a complication, length of stay, hospital site, ethnicity and child's age. This was a descriptive study only.

settingFour UK specialist hospitals.

resultsWe recruited 585 children to the substudy with 385 responses (response rate 66%).81% of parents reported that new members of staff always introduced themselves (18% sometimes, 1% no). Almost all parents said they were encouraged to be involved in decision-making, but often only to some extent (59% 'yes, definitely'; 37% 'to some extent'). Almost two-thirds of parents said they were told different things by different people which left them feeling confused (10% 'a lot'; 53% 'sometimes'). Two-thirds (66%) reported that staff were definitely aware of their child's medical history (31% 'to some extent'). 90% said the operation was definitely explained to them (9% 'to some extent') and 79% that they were definitely told what to do if they were worried after discharge (17% 'to some extent').Parents of children with a complication tended to give less positive responses for involvement in decision-making, consistent communication and staff awareness of their child's medical history. Parents whose children had longer stays in hospital tended to report lower levels of consistent communication and involvement in decision-making.

conclusionsOur results emphasise the need for consistent communication with families, particularly where complications arise or for children who have longer stays in the hospital.

Indexed as

communicationhealth services researchpaediatric heart surgery

Identifiers

PMID31206072
PMCPMC6542420
OpenAlexW2940508691

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.