ArticleResearch involvement and engagement2019
Co-producing a shared understanding and definition of empowerment with people with dementia.
Article in Research involvement and engagement, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.
What it found
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The trial behind it
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Who cites it
21 citing papers in PubMed.
- The development and preliminary validation of a multidimensional assessment scale for loneliness in nursing homes.International journal of nursing studies advances · 2026Article
- Rationale and design of a multidomain lifestyle program for mild cognitive impairment.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2026Article
- Revitalizing Dementia Care: Empowering Lives Through Personalized Exercise and Advanced Technologies.Healthcare (Basel, Switzerland) · 2025Article
- Between empowerment, patronization, and surveillance. A semi-structured interview study with persons with dementia and family caregivers on the empowering opportunities and perils of intelligent assistive technologies.BMC medical ethics · 2025Article
- Engaging With a Community of Practice in Dementia: Impacts on Skills, Knowledge, Networks and Accessing Support.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Meaningful inclusion of people with dementia in interview research: adopting the "intentional stance".Frontiers in dementia · 2025Article
- From inclusion to empowerment: advancing equity through co-research with people living with dementia.Frontiers in dementia · 2025Article
- Reflections on co-production: Developing a dementia research funding application with a diverse lived experience group.Dementia (London, England) · 2024Article
- Public involvement in chronic respiratory diseases research: A qualitative study of patients', carers' and citizens' perspectives.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Empowerment in structures. Practical-ethical considerations of the preconditions for technology-assisted dementia care in Germany based on an expert-interview study.Frontiers in psychiatry · 2024Article
- The psychological effects of research participation on people with dementia: findings from a German exploratory interview study.Frontiers in dementia · 2024Article
- Living Well with Dementia: Feeling Empowered through Interaction with Their Social Environment.International journal of environmental research and public health · 2023Article
- Technological Solutions for Diagnosis, Management and Treatment of Alzheimer's Disease-Related Symptoms: A Structured Review of the Recent Scientific Literature.International journal of environmental research and public health · 2022Review
- Everyday wishes of older people living with dementia in care planning: a qualitative study.BMC health services research · 2022Article
- It takes three to tango: An ethnography of triadic involvement of residents, families and nurses in long-term dementia care.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Adherence and acceptance of a home-based telemonitoring application used by multi-morbid patients aged 65 years and older.Journal of telemedicine and telecare · 2022Article
- A Case Study of Co-production Within a Mental Health Recovery College Dementia Course: Perspectives of A Person With Dementia, Their Family Supporter and Mental Health Staff.Frontiers in rehabilitation sciences · 2022Article
- Health-related quality of life in elderly, multimorbid individuals with and without depression and/or mild cognitive impairment using a telemonitoring application.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Article
- Aging 4.0? Rethinking the ethical framing of technology-assisted eldercare.History and philosophy of the life sciences · 2021Article
- Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
backgroundEmpowerment for people with dementia (PWD) is not well defined within the research literature and we feel that this is an important area for development. It is important to seek, consult, and co-produce such a definition with PWD who are more actively involved in their communities post diagnosis (e.g. no longer the 'long goodbye'). This study seeks to combine academic literature review methods with participatory/co-production methods in order to address this gap. We feel this approach also adds to developing methodologies in the field of co-production and user involvement.
methodsWe use a unique approach toward a definition of empowerment for PWD.
resultsPhase 1 and 2 led to a definition of empowerment relevant to PWD. This shared understanding of empowerment was defined by PWD as 'A confidence building process whereby PWD are respected, have a voice and are heard, are involved in making decisions about their lives and have the opportunity to create change through access to appropriate resources'.
conclusionsThe strength of this research lies in addressing the current confusion and arbitrariness of empowerment within the context of dementia. This coproduced work also provides evidence for not only the possibility, but also the added value of involving PWD in research in terms of unique insights afforded by their lived experiences.
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Registered trials
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