ArticleBMC health services research2019
Lack of patient education is risk factor of disease flare in patients with systemic lupus erythematosus in China.
Article in BMC health services research, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03024307 (Evaluation of an Outpatient Pharmacy Clinical Services Program on Adherence and Clinical Outcomes Among Patients With Rheumatic Diseases), which is not on this map. Cited by 16 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Evaluation of an Outpatient Pharmacy Clinical Services Program on Adherence and Clinical Outcomes Among Patients With Rheumatic Diseases
Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it, 33 citations in OpenAlex.
- The Systemic Lupus Erythematosus Interventional Trials in Mainland China: A Continuous Challenge.Frontiers in immunology · 2022Pooled it
- EFINUTRILES Study: Integrative Extra Virgin Olive Oil and Multimodal Lifestyle Interventions for Cardiovascular Health and SLE Management.Nutrients · 2025Trial
- Tailored pharmacist-led intervention to improve adherence to Iron supplementation in premature infants: a randomized controlled trial in China.Frontiers in endocrinology · 2023Trial
- Facilitators and barriers to medication adherence in systemic lupus erythematosus: a qualitative study in China.Scientific reports · 2026Article
- Observational
- Patient Experience Regarding Medication-Related Information Received in a Rural Private Polyclinic Setting in Vietnam.Journal of patient experience · 2025Article
- Article
- Environmental risk factors of systemic lupus erythematosus: a case-control study.Scientific reports · 2023Article
- Health Care-Seeking Behaviors, Disease Progression, Medications, Knowledge of, and Attitudes Toward Systemic Lupus Erythematosus in China: Cross-sectional Survey Study.JMIR public health and surveillance · 2023Article
- Health disparities in systemic lupus erythematosus-a narrative review.Clinical rheumatology · 2022Review
- Article
- Parents' satisfaction with information received on psychotropic drugs used by adolescents in a Mental Health Unit.Revista paulista de pediatria : orgao oficial da Sociedade de Pediatria de Sao Paulo · 2022Article
- Barriers to medication adherence and degree of nonadherence in a systemic lupus erythematosus (SLE) outpatient population.Rheumatology international · 2021Observational
- Risk factors for the flare of systemic lupus erythematosus and its influence on prognosis: a single-center retrospective analysis.Advances in rheumatology (London, England) · 2021Article
- Patient-reported outcome measure of the quality of life in Ugandans living with autoimmune rheumatic diseases.The Egyptian rheumatologist · 2021Article
- 'Information is power': A qualitative exploration of co-producing education resources about cardiovascular disease in partnership with women living with lupus.Women's health (London, England)Article
Corrections and comments
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Authors and funding
9 authors at 3 institutions in 1 country.
Funding
Abstract
backgroundTo explore the inadequacies of health service and its impact on clinical outcomes of patients with systemic lupus erythematosus (SLE) in China.
methodsA total of 210 SLE patients were randomly recruited between January 2017 and January 2018. Each patient received self-report questionnaires to assess medication adherence [Compliance Questionnaire for Rheumatology (CQR)], beliefs about medicines [Beliefs about Medicines Questionnaire (BMQ)] and satisfaction about medicine information [the Satisfaction with Information about Medicines Scale (SIMS)]. Associations between SLE disease activity index (SLEDAI-2 K) and observed factors were analyzed by multiple logistic regression.
resultsBased on CQR, only 28.10% patients were adherent. The score of BMQ was 2.85 ± 5.42, and merely 32.38% patients were satisfied with the information about their prescribed medicines. Disease activity was associated with SIMS, EuroQol five-dimensions [EQ5D], Systemic Lupus International Collaborating Clinics (SLICC), depression, use of NSAID (P ≤ 0.05). Remission of disease was positively correlated with SIMS (OR = 0.16, 95% CI: [0.06, 0.40]), and BMQ (OR = 0.64, 95%CI: [0.43, 0.94]).
conclusionIn this study, the scores of BMQ and SIMS were low, implying defects in the patient education of health service system, which led to disease flare in Chinese SLE patients.
trial registrationClinicalTrials.gov ID: NCT03024307 . Registered January 18, 2017.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.