Evidence map›Paper›PMID 31195432›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2019

Towards a decision aid for self-tests: Users' experiences in The Netherlands.

Willemijn M den Oudendammer, Jacqueline E W Broerse

Open access · goldAbstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
0.7field-weighted citation impact, top 26% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 14 citations in OpenAlex.

  1. Observational
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  7. Towards a decision aid for self-tests: Users' experiences in The Netherlands.Health expectations : an international journal of public participation in health care and health policy · 2019
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors at 1 institution in 1 country.

Willemijn M den OudendammerFaculty of Science, Athena Institute, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.
Jacqueline E W BroerseFaculty of Science, Athena Institute, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.ORCID 0000-0002-8478-3422
Vrije Universiteit Amsterdam · NL

Funding

Ministerie van Volksgezondheid, Welzijn en Sport S06114
6 · The paper itself

Abstract

backgroundSelf-tests enable the identification of (risk factors for) diseases and are carried out on the user's initiative without medical indication or advice and often unaided by a health professional. They are frequently used, and their availability and usage are expected to grow. Self-testing has both advantages and disadvantages. Making a well-informed decision about whether to self-test and which self-test to use is of major importance.

objectiveTo provide insights into the experiences of self-test users, identifying reasons to self-test and perceived (dis)advantages of using self-tests and the information highlighted as relevant by self-test users to make well-informed decisions.

methodsIn a qualitative study, 28 users of a wide variety of self-tests shared their experiences in focus groups and interviews.

resultsPerceived disadvantages of self-testing included the following: a wide range of available self-tests, lack of insights into their reliability and content, possibility of mistakes in administering them, possibility of false-positive and false-negative results, lack of clarity about how to interpret results and consequently what action to take and fear of not being taken seriously by a general practitioner. Self-test aspects that were viewed as most important include informed decision making, user-friendliness, usefulness and reliability of results.

conclusionA decision aid for future self-test users can help people make a deliberate decision on whether to use a self-test and which particular self-test to use from the wide range available. The government, health professionals, patient organizations, consumer organizations and citizens all have a role to play in the development and implementation of a decision aid.

Indexed as

Decision MakingAdultAgedAttitude to HealthDiagnostic Tests, RoutineFemaleFocus GroupsHumansInterviews as TopicMaleMiddle AgedNetherlandsQualitative ResearchReproducibility of ResultsSelf CareYoung Adultconsumer experienceconsumer informationdecision makingdiagnostic testqualitative researchself-managementSelf-test

Identifiers

PMID31195432
PMCPMC6803405
OpenAlexW2949154105

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.