ArticleERJ open research2019
Communication difficulties reported by patients diagnosed with idiopathic pulmonary fibrosis and their carers: a European focus group study.
Article in ERJ open research, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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The trial behind it
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Who cites it
10 citing papers in PubMed.
- Patient-centered care in pulmonary fibrosis: access, anticipate, and act.Respiratory research · 2024Review
- A scoping review of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis (IPF).PloS one · 2024Article
- When should palliative care be introduced for people with progressive fibrotic interstitial lung disease? A meta-ethnography of the experiences of people with end-stage interstitial lung disease and their family carers.Palliative medicine · 2022Article
- Advance Care Planning Needs in Idiopathic Pulmonary Fibrosis: A Qualitative Study.The American journal of hospice & palliative care · 2022Article
- Communicating with patients with idiopathic pulmonary fibrosis: can we do it better?ERJ open research · 2022Review
- The Portuguese Model of Home Respiratory Care: Healthcare Professionals' Perspective.Healthcare (Basel, Switzerland) · 2021Article
- Patients' and healthcare professionals' perspectives on the idiopathic pulmonary fibrosis care journey: a qualitative study.BMC pulmonary medicine · 2021Article
- Gypenosides Attenuate Pulmonary Fibrosis by Inhibiting the AKT/mTOR/c-Myc Pathway.Frontiers in pharmacology · 2021Article
- Raising awareness on physician-patient communication in IPF: an Italian multicenter study exploring the pulmonologist's perspective.Sarcoidosis, vasculitis, and diffuse lung diseases : official journal of WASOG · 2021Article
- Patient and healthcare professional perspectives on telehealth in the care of interstitial lung disease.Chronic respiratory diseaseArticle
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
This paper explores commonalities in the experience and unmet needs of idiopathic pulmonary fibrosis (IPF) patients and carers in Europe throughout the care pathway, focusing specifically on the unmet communication needs of patients and carers. Four patient organisations/groups in Europe held focus groups (Italy (seven patients and four carers); Belgium (six patients); Ireland (23 patients and 10 carers); and England, UK (five patients and three carers)). A focus group schedule was provided and translated into the language of each focus group by the European Lung Foundation (ELF). Content analysis was conducted by the ELF and verified by the authors of the paper. Three main themes emerged: professional-patient, professional-professional and patient-patient communication. Within these themes, eight priority areas were highlighted by two or more of the focus groups. In addition, 17 suggested action points were identified. Patients and carers in Europe have unmet communication needs, which could be met by specialist physicians and specialist centres providing more effective information and signposting to support services, including support groups and patient organisations.
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Registered trials
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