ArticleThe Gerontologist2019
Helping Hispanic Family Caregivers of Persons With Dementia "Get the Picture" About Health Status Through Tailored Infographics.
Article in The Gerontologist, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed.
- Evaluating the effect of infographics on public recall, sentiment and willingness to use face masks during the COVID-19 pandemic: a randomised internet-based questionnaire study.BMC public health · 2021Trial
- Exploring the unmet needs of Latino dementia caregivers: a qualitative study.The Gerontologist · 2025Article
- Resigned but Resilient: Caregiver Perceptions of Role Ambiguity and Quality of Care During Hospital-to-Home Transitions of Older Latinos Living With Dementia.Journal of aging and health · 2025Article
- A Practical Guide to Participatory Design Sessions for the Development of Information Visualizations: Tutorial.Journal of participatory medicine · 2024Article
- "It Attracts Your Eyes and Brain": Refining Visualizations for Shared Decision-Making with Heart Failure Patients.Applied clinical informatics · 2024Article
- From Research to Knowledge Translation: Co-Producing Resources to Raise Awareness of Meals on Wheels in England.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Perceptions of patient-reported outcome data access and sharing among patients with heart failure: ethical implications for research.European journal of cardiovascular nursing · 2024Article
- Seeing things the same way: perspectives and lessons learned from research-design collaborations.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Community engagement in the development of health-related data visualizations: a scoping review.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Visualizing machine learning-based predictions of postpartum depression risk for lay audiences.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Participant-guided development of bilingual genomic educational infographics for Electronic Medical Records and Genomics Phase IV study.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Alzheimer's disease and Alzheimer's disease-related dementias in Hispanics: Identifying influential factors and supporting caregivers.Ageing research reviews · 2024Review
- Voice-Activated Self-Monitoring Application (VoiS): Perspectives from People with Diabetes and Hypertension.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2024Article
- "A patient should not have to ask": Women's experiences of patient education about preconception care for type 2 diabetes.Patient education and counseling · 2023Article
- Designing infographics in health research with patients and the public: A scoping review protocol.PloS one · 2023Article
- Environmental Scan of Parent-Facing Health Information About Antibiotics in US Children's Hospital Websites.Journal of the Pediatric Infectious Diseases Society · 2022Article
- Developing an educational resource for parents on pediatric catheter-associated urinary tract infection (CAUTI) prevention.American journal of infection control · 2022Article
- Consumer Perceptions of a Shingles Infograph Intervention and Vaccination Plans in Community Pharmacy Settings.Innovations in pharmacy · 2022Article
- Clinician Use of HIV-Related Infographics During Clinic Visits in the Dominican Republic is Associated with Lower Viral Load and Other Improvements in Health Outcomes.AIDS and behavior · 2021Article
- User-centered design of a scalable, electronic health record-integrated remote symptom monitoring intervention for patients with asthma and providers in primary care.Journal of the American Medical Informatics Association : JAMIA · 2021Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
BACKGROUND AND
objectivesCaregivers need to understand their health status and the disabilities of the care recipient to engage in effective health management. Infographics tailored with personal health data are a promising approach to facilitating comprehension, particularly for individuals with low health literacy/limited English proficiency. Such approaches may be especially important for dementia caregivers given the high care burden. RESEARCH DESIGN AND
methodsGuided by the Health Belief Model and the Data-Frame Theory of Sensemaking, we conducted iterative participatory design sessions with Hispanic family caregivers (N = 16) of persons with dementia. We created multiple prototype infographic designs to display scores on validated instruments of topics such as caregiving burden, overall health, and psychological distress. We retained and refined designs participants judged to be easily comprehensible. Analysis focused on identifying the graphical elements that contributed to the comprehensibility of designs and on evaluating participants' reactions to the designs.
resultsSuccessful infographics used intuitive scaling consistent with caregivers' perspective of dementia as inevitable decline. Participants reacted to infographics by describing the self-management actions they would take to address the health issue at hand. DISCUSSION AND IMPLICATIONS: Tailored infographics supported caregivers' comprehension of their health status and served as cues to engaging in self-management. As such, they should be presented in the context of informational support that can facilitate selection of appropriate next steps. This can mitigate the potential mental and physical health consequences of caregiving and enable caregivers to continue to care for their relatives with dementia with less damage to their own well-being.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.