ArticleHarm reduction journal2019
Achieving meaningful participation of people who use drugs and their peer organizations in a strategic research partnership.
Article in Harm reduction journal, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 40 papers, 2 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
40 citing papers in PubMed, 2 syntheses or guidelines pooled it, 85 citations in OpenAlex.
- "You are helping from the heart not just from the head": a systematic review and qualitative evidence synthesis of the experiences of peer workers working with people experiencing homelessness and substance use.BMC public health · 2025Pooled it
- Provision of peer support at the intersection of homelessness and problem substance use services: a systematic 'state of the art' review.BMC public health · 2020Pooled it
- Centering peers in design and training for a peer-delivered contingency management program for self-identified harm reduction and treatment goals.Harm reduction journal · 2025Trial
- Questions for more insightful and useful analyses of barriers and facilitators to public involvement and engagement in health research: a critical narrative review.Research involvement and engagement · 2026Review
- Working with, learning from and giving back: Principles for collaborative research with people who use drugs.Addiction (Abingdon, England) · 2026Article
- Community Advisory Board Members Speak Out: Insights From an Opioid Overdose Study.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Defining success together: a collaborative approach for client and provider-engaged outcomes indicator development in Ontario.Research involvement and engagement · 2026Article
- Building Capacity for Community-Engaged Peer-Focused Research: Results From the IRIS Recovery Research Fellowship.Health promotion practice · 2026Article
- "Because we're the experts": centering the expertise of people who use drugs to identify and propose solutions for overdose prevention.Harm reduction journal · 2025Article
- A qualitative study exploring motives for the transition from injecting to smoking drugs in Vancouver, British Columbia.The International journal on drug policy · 2025Article
- Increasing opportunities for community input in harm reduction program development using iterative engagement.Harm reduction journal · 2025Review
- Mapping experiences of workplace stigma and discrimination within the lived-living experience of illicit drug use and bloodborne virus peer workforce: a scoping review.Harm reduction journal · 2025Article
- Substance Checking Outreach and PrEP Engagement (SCOPE) Study: protocol for a non-randomised clinical trialBMJ open · 2025Article
- "To not feel fake, it can't be fake": co-creation of a harm reduction, peer-delivered, health-system intervention for people who use drugs.Harm reduction journal · 2025Article
- Integrating People With Lived Experience of Carceral System Involvement Into Research: Lessons Learned From Ending the HIV Epidemic Research Teams.Journal of acquired immune deficiency syndromes (1999) · 2025Article
- Community-Driven Research with People Who Use Drugs: A Virtual Project During Multiple Epidemics.Sociological methodology · 2025Article
- A hand-washing community-based educational intervention to reduce abscess incidence among people who inject drugs: a cluster randomised controlled clinical trial protocol (the HAWA study protocol).BMC public health · 2024Article
- A Collaborative Approach to Understanding the Intersections of Practice and Policy for Peers in the Alcohol and Other Drugs Sector.International journal of environmental research and public health · 2024Article
- Using digital technology to reduce drug-related harms: a targeted service users' perspective of the Digital Lifelines Scotland programme.Harm reduction journal · 2024Article
- Walk With Me: reducing harm and confronting the toxic drug poisoning crisis in small British Columbia cities through community engaged research.Harm reduction journal · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors at 4 institutions in 2 countries.
Funding
Abstract
backgroundPeer-led programs with people who use drugs (PWUD) have been a key characteristic of the harm reduction in many countries, including their involvement in research. However, peer involvement in research is often limited to recruitment, consultation, and reporting back, rather than a genuine collaboration in the priority setting, design, and conduct of research. PWUD peer organizations face ongoing challenges to demonstrate the depth of their knowledge of current and emerging issues within drug-using networks and the value of their peer insights for effective research and policy. The identification of benefits, barriers, and enablers for meaningful participation of PWUD in research has often been limited to methodological rather than system level factors.
methodsThis paper draws on the experiences and findings of the What Works and Why (W3) Project, a 5-year collaborative study with peer organizations. The study drew on systems thinking methods to develop a framework to demonstrate the role of peer organizations within their community and policy systems. The study required peer staff and researchers to undertake the simultaneous role of drivers, participants, and analysts in the research. To identify the learnings in relation to meaningful participation of PWUD peer organizations in research, we drew together the insights and experiences of peer staff and researchers across the 5 years of the study
resultsThe W3 Project provided insights into the nuances of community-engaged research practice and the ongoing benefits, barriers, and enablers to the meaningful participation of PWUD and their peer organizations. These included system-level barriers and enablers beyond individual research projects or methodology. The capacity of research and peer organizations to maintain meaningful peer participation in research can be restricted or enhanced by the systems in which they are embedded.
conclusionsRecognizing peer organizations as active participants and drivers within community and policy systems can help clarify their unique and critical role in research. Achieving meaningful collaboration with PWUD peer organizations requires looking beyond good practice methods to the system-level factors with attention to the system-level benefits, barriers, and enablers.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.