Evidence map›Paper›PMID 31180177›Full record

ArticleJournal of genetic counseling2019

Genetic testing and eHealth usage among Deaf women.

Poorna Kushalnagar, Juliana Holcomb, Georgia R Sadler

Abstract read
In one paragraph

Article in Journal of genetic counseling, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Increasing inclusivity in precision medicine research: Views of deaf and hard of hearing individuals.Genetics in medicine : official journal of the American College of Medical Genetics · 2022
    Article
  5. Article
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Poorna KushalnagarDepartment of Psychology, Gallaudet University, Washington, District of Columbia.ORCID 0000-0002-8658-6932
Juliana HolcombDeaf Health Communication & Quality of Life Center, Gallaudet University, Washington, District of Columbia.
Georgia R SadlerDepartment of Surgery, University of California at San Diego, San Diego, California.

Funding

Deaf Sign Language Users' Experiences in Seeking Health InformationR15DC014816 · NIDCD · ROCHESTER INSTITUTE OF TECHNOLOGY · PI KUSHALNAGAR, POORNA · 2015 to 2015
$418k
NIDCD NIH HHS R15 DC014816
6 · The paper itself

Abstract

In the past decade, accessible information in American Sign Language (ASL) about cancer and genetic testing is expanding on eHealth platforms, including social network sites, commercial sites, and mobile apps. Primary data on genetic testing awareness and genetic testing for BRCA 1/2 among Deaf women were gathered using HINTS-ASL survey between November 2016 and April 2018, and secondary data for hearing women were drawn from NCI's HINTS 5 Cycle 1 survey in 2017. Deaf women who had heard of DNA testing (63%) were more likely to be young adults, college graduates, and/or have a family history of cancer. Compared to hearing women, Deaf women who had heard of genetic testing were more likely to use social networking sites to read or share information about medical topics and watch health-related videos. Making eHealth platforms accessible in ASL and easy-to-understand text can help reduce knowledge gap in genetic testing, since some Deaf women may not be using genetic testing to help identify whether they are at increased risk for breast and ovarian cancer early on, before they are diagnosed with cancer.

Indexed as

Genetic TestingPatient Education as TopicPersons with Hearing DisabilitiesTelemedicineAccess to InformationFemaleHumansSign LanguageSurveys and QuestionnairesYoung AdultdeafdisabilitydisparitiesDNAeHealthgenetic counselinggenetic knowledgegenetic testinghereditary breast cancersign languagewomen

Identifiers

PMID31180177
PMCPMC6777990

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.