Evidence map›Paper›PMID 31176359›Full record

ArticleBMC neurology2019

Re-building relationships after a spinal cord injury: experiences of family caregivers and care recipients.

Gaya Jeyathevan, Jill I Cameron, B Catharine Craven, Sarah E P Munce, Susan B Jaglal

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC neurology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
24citing papers in PubMed, 3 pooled it
3.7field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

24 citing papers in PubMed, 3 syntheses or guidelines pooled it, 57 citations in OpenAlex.

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  11. The Saskatchewan Caregiver Experience Study: Support Priorities of Caregivers of Older Adults.The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres · 2024
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 1 institution in 1 country.

Gaya JeyathevanInstitute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada.
Jill I CameronNeural Engineering and Therapeutics Team, KITE, Toronto Rehab - University Health Network, Toronto, Ontario, Canada.
B Catharine CravenInstitute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada.
Sarah E P MunceInstitute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada.
Susan B JaglalInstitute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada. susan.jaglal@utoronto.ca.ORCID http://orcid.org/0000-0002-2930-1443
University Health Network · CA

Funding

Craig H. Neilsen Foundation 363697
6 · The paper itself

Abstract

backgroundFollowing spinal cord injury (SCI), family members are often called upon to undertake the caregiving role. This change in the nature of the relationship between the individuals with SCI and their families can lead to emotional, psychological, and relationship challenges. There is limited research on how individuals with SCI and their family caregivers adapt to their new lives post-injury, or on which dyadic coping strategies are used to maintain relationships. Thus, the objectives of this study were to obtain an in-depth understanding of 1) the experiences and challenges within a caregiving relationship post-SCI among spouses, as well as parents and adult children; and 2) the coping strategies used by caregivers and care recipients to maintain/rebuild their relationships.

methodsA qualitative descriptive approach with an exploratory design was used. Semi-structured face-to-face and telephone interviews were conducted. Thematic analysis was used to identify key themes arising from individuals with SCI's (n = 19) and their family caregivers' (n = 15) experiences.

resultsIndividuals with SCI and family caregivers spoke in-depth and openly about their experiences and challenges post-injury, with two emerging themes (including subsequent sub-themes). The first theme of deterioration of relationship, which reflects the challenges experienced/factors that contributed to disintegration in a relationship post-injury, included: protective behaviours, asymmetrical dependency, loss of sex and intimacy, and difficulty adapting. The second theme of re-building/maintaining the relationship, which reflects the strategies used by dyads to adjust to the changes within the relationship brought upon by the injury, included: interdependence, shifting commonalities, adding creativity into routine, and creating a new normal.

conclusionsThese findings should alert healthcare professionals and peer support groups as to the need for possible education and training (e.g., coping strategies, communication skills training) as well as counseling prior to discharge to assist individuals with SCI and family caregivers with adaptation to a new life post-injury.

Indexed as

Adaptation, PsychologicalAdultAgedAged, 80 and overCaregiversFamily RelationsFemaleHumansMaleMiddle AgedQualitative ResearchSpinal Cord InjuriesYoung AdultDyadsFamily caregivingQualitativeRelationshipsSpinal cord injury

Identifiers

PMID31176359
PMCPMC6555989
OpenAlexW2950018467

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.