ArticleJournal of autism and developmental disorders2019
Interest in Research Participation Among Caregivers of Children with Neurodevelopmental Disorders.
Article in Journal of autism and developmental disorders, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 13 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed, 18 citations in OpenAlex.
- Attitudes Towards Medical Research Participation Among Those With Down Syndrome and Their Caregivers.Journal of policy and practice in intellectual disabilities · 2025Article
- Associations between emotion and behavior codes and ADOS-2 scores in a sample of children referred for autism evaluation.Autism : the international journal of research and practice · 2025Article
- Convergent Validity of the Feeding and Eating in AutiSm Together Assessment (FEAST).The American journal of occupational therapy : official publication of the American Occupational Therapy Association · 2025Article
- Short report: Examining race, ethnicity, sex, and gender among autistic youth and their educators who participated in school-based research.Autism : the international journal of research and practice · 2024Article
- Psychometric Evaluation of the Autism Spectrum Rating Scales (6-18 Years Parent Report) in a Clinical Sample.Journal of autism and developmental disorders · 2024Article
- Diagnostic certainty during in-person and telehealth autism evaluations.JCPP advances · 2024Article
- A Prospective, Longitudinal Study of Caregiver-Reported Adaptive Skills and Function of Individuals withAdvances in neurodevelopmental disorders · 2024Article
- Prevalence of gastrointestinal symptoms among autistic individuals, with and without co-occurring intellectual disability.Autism research : official journal of the International Society for Autism Research · 2023Article
- Research attitudes in families of individuals with Down syndrome: importance for clinical trials.Alzheimer's research & therapy · 2022Article
- Replication study for ADOS-2 cut-offs to assist evaluation of autism spectrum disorder.Autism research : official journal of the International Society for Autism Research · 2022Article
- Characteristics of the autism spectrum disorder gastrointestinal and related behaviors inventory in children.Autism research : official journal of the International Society for Autism Research · 2022Article
- Dysregulation in Children and Adolescents Presenting to a Multidisciplinary Autism Clinic.Journal of autism and developmental disorders · 2022Article
- Caregiver Perspectives on Informed Consent for a Pediatric Learning Healthcare System Model of Care.AJOB empirical bioethicsArticle
Corrections and comments
- Erratum issued
Authors and funding
10 authors at 3 institutions in 1 country.
Funding
Abstract
The goal of this study was to examine caregiver agreement to hear about local research opportunities by joining a clinical research registry. Data from this cross-sectional study were gathered, between 2014 and 2017, across two outpatient clinics: (1) a multidisciplinary Autism Spectrum Disorder (ASD) clinic (N = 5228) and (2) a general psychology clinic serving youth with, or at risk for, a neurodevelopmental disorder (NDD; N = 5040). Overall, more than 8 in 10 caregivers agreed to join the registry. Several child clinical characteristics, as well as racial and sociodemographic factors, were predictive of parental agreement. Findings suggest caregivers of youth with ASD and NDD are amenable to joining the local research enterprise, however further work is needed to understand why some caregivers decline.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.