Evidence map›Paper›PMID 31165390›Full record

ArticleMedicine, health care, and philosophy2020

Autism, autonomy, and authenticity.

Elisabeth M A Späth, Karin R Jongsma

Abstract read
In one paragraph

Article in Medicine, health care, and philosophy, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed.

  1. Experiencing Independence: Perspectives from Autistic Adults.Journal of autism and developmental disorders · 2026
    Article
  2. Review
  3. Article
  4. Article
  5. Article
  6. Trajectories of positive affect in autistic individuals during the transition to adulthood.Autism : the international journal of research and practice · 2025
    Article
  7. Article
  8. The Foundations of Autistic Flourishing.Current psychiatry reports · 2023
    Review
  9. Review
  10. Article
  11. Article
  12. Review
  13. Article
  14. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Elisabeth M A SpäthDepartment of Ethics and History of Medicine, University Medical Center Göttingen, Humboldtallee 36, 37073, Göttingen, Germany.
Karin R JongsmaDepartment of Ethics and History of Medicine, University Medical Center Göttingen, Humboldtallee 36, 37073, Göttingen, Germany. k.r.jongsma@umcutrecht.nl.ORCID http://orcid.org/0000-0001-8135-6786

Funding

Volkswagen Foundation 11Volkswagen Foundation 519Volkswagen Foundation 762Volkswagen Foundation 917/14 (ZN3010)
6 · The paper itself

Abstract

Autonomy of people on the autism-spectrum has only been very rarely conceptually explored. Autism spectrum is commonly considered a hetereogenous disorder, and typically described as a behaviorally-defined neurodevelopmental disorder associated with the presence of social-communication deficits and restricted and repetitive behaviors. Autism research mainly focuses on the behavior of autistic people and ways to teach them skills that are in line with social norms. Interventions such as therapies are being justified with the assumption that autists lack the capacity to be self-reflective and to be "author of their lives". We question this assumption, as some empirical research shows that autists are aware of their strengths and are critical about social norms, we take this as a starting point to reconsider the beliefs about autistic people's capacities. As a theoretical framework, we draw on Berlin's idea of positive and negative liberty as he clearly distinguishes between one's own developed preferences and the simple absence of interference. By drawing on the concept of positive liberty, we illustrate that a lot of autists are aware of their own needs, and usually do not deny their own needs, values and interests. This makes them less prone than non-autistic people to adapt their preferences to external influences, which might be seen as sticking to an authentic way of living. Our analysis shows that many autists are hindered to be(come) autonomous due to unjustified interference, unreflected assumptions about their self-determination, or by paternalistic actions. These observations contribute to a better understanding when help and interference are justified and a more differentiated understanding of autonomy of autistic people.

Indexed as

Personal AutonomySocial BehaviorAutism Spectrum DisorderCommunicationHumansAdaptive preferencesAuthenticityAutismAutonomyJusticeNegative and positive liberty

Identifiers

PMID31165390
PMCPMC7039841

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.