Evidence map›Paper›PMID 31165374›Full record

Trial reportBreast cancer research and treatment2019

Sharing in care: engaging care partners in the care and communication of breast cancer patients.

Jennifer L Wolff, Jennifer Aufill, Diane Echavarria, JaAlah-Ai Heughan, Kimberley T Lee, Roisin M Connolly, John H Fetting, Danijela Jelovac, Katie Papathakis, Carol Riley and 6 more

2 registry-linked trialsAbstract readRandomized Controlled Trial
PubMed Full text at PMC Publisher
In one paragraph

Trial report in Breast cancer research and treatment, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 20 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
20citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03283553 nacompletednot on this map

Involving Family to Improve Communication in Breast Cancer Care

TypeinterventionalSponsorSidney Kimmel Comprehensive Cancer Center at Johns HopkinsRan2017 to 2019Enrolled132ConditionsActive Breast Cancer TreatmentArmsChecklist, MyChart, OpenNotes, Usual Care
NCT04593472 nacompletednot on this mapstarted 2020, after this paper: background citation

Sharing Healthcare Wishes in Primary Care

TypeinterventionalSponsorJohns Hopkins UniversityRan2020 to 2025Enrolled273ConditionsCognitive ImpairmentArmsSharing Healthcare Wishes in Primary Care (SHARE), Minimally Enhanced Usual Care
3 · Its place in the literature

Who cites it

20 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Strategies to promote the dissemination of psychosocial digital health resources for those affected by cancer: scoping review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
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  17. Distinct dyadic coping profiles in Chinese couples with breast cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Jennifer L WolffThe Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA. jwolff2@jhu.edu.
Jennifer AufillThe Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA.
Diane EchavarriaThe Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA.
JaAlah-Ai HeughanThe Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA.
Kimberley T LeeThe Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Roisin M ConnollyThe Johns Hopkins University School of Medicine, Baltimore, MD, USA.
John H FettingThe Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Danijela JelovacThe Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Katie PapathakisThe Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Carol RileyThe Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Vered StearnsThe Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Elissa ThornerThe Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Nelli ZafmanThe Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Howard P LevyThe Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Sydney M DyThe Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA.
Antonio C WolffThe Johns Hopkins University School of Medicine, Baltimore, MD, USA. awolff@jhmi.edu.ORCID http://orcid.org/0000-0003-3734-1063

Funding

Translational Research Central ServicesP30CA006973 · NCI · JOHNS HOPKINS UNIVERSITY · PI ALAN KEITH MEEKER · 1985 to 2026
$208.6M
NHLBI Training Program in PharmacoepidemiologyT32HL139426 · NHLBI · JOHNS HOPKINS UNIVERSITY · PI G. Caleb Alexander, JODI B. SEGAL · 2018 to 2026
$2.5M
Strengthening Informal Support Resources with Strategic Methodological AdvancesP30AG048773 · NIA · JOHNS HOPKINS UNIVERSITY · PI ROTH, DAVID L · 2014 to 2018
$2.0M
Optimizing Family Involvement in Late-Life Depression CareK01MH082885 · NIMH · JOHNS HOPKINS UNIVERSITY · PI WOLFF, JENNIFER L. · 2009 to 2013
$755k
Involving Family to Improve Primary Care Visits for Cognitively Impaired PatientsR21AG049967 · NIA · JOHNS HOPKINS UNIVERSITY · PI WOLFF, JENNIFER L. · 2015 to 2016
$446k
NCI NIH HHS P30 CA006973NHLBI NIH HHS T32 HL139426NIA NIH HHS P30 AG048773NIA NIH HHS P30AG048773NIA NIH HHS P30CA006973NIA NIH HHS R21 AG049967NIA NIH HHS R21AG049967NIMH NIH HHS K01 MH082885Susan G. Komen SAC170001
6 · The paper itself

Abstract

purposeFamily is often overlooked in cancer care. We developed a patient-family agenda setting intervention to engage family in cancer care communication.

methodsWe conducted a pilot randomized controlled trial (NCT03283553) of patients on active treatment for breast cancer and their family "care partner." Intervention dyads (n = 69) completed a self-administered checklist to clarify care partner roles, establish a shared visit agenda, and facilitate MyChart patient portal access. Control dyads (n = 63) received usual care. We assessed intervention acceptability and initial effects from post-visit surveys and MyChart utilization at 6 weeks.

resultsAt baseline, most patients (89.4%) but few care partners (1.5%) were registered for MyChart. Most patients (79.4%) wanted their care partner to have access to their records and 39.4% of care partners reported accessing MyChart. In completing the checklist, patients and care partners endorsed active communication roles for the care partner and identified a similar visit agenda: most (> 90%) reported the checklist was easy, useful, and recommended it to others. At 6 weeks, intervention (vs control) care partners were more likely to be registered for MyChart (75.4% vs 1.6%; p < 0.001), to have logged in (43.5% vs 0%; p < 0.001) and viewed clinical notes (30.4% vs 0%; p < 0.001), but were no more likely to exchange direct messages with clinicians (1.5% vs 0%; p = 0.175). No differences in patients' MyChart use were observed, but intervention patients more often viewed clinical notes (50.7% vs 9.5%; p < 0.001).

conclusionsA patient-family agenda setting intervention was acceptable and affected online practices of cancer patients and care partners.

Indexed as

CaregiversPatient CareAdultAgedBreast NeoplasmsCommunicationFemaleHumansMiddle AgedPatient Acceptance of Health CarePhysician-Patient RelationsTime FactorsBreast cancerConsumer health informationElectronic health recordsHealth information technologyHealth literacy

Identifiers

PMID31165374
PMCPMC6640103

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.